The online resources recommended below include links to important information relevant to this area that is primarily available online or can be printed off as a contained document. The link will take you to the section that is relevant to this navigator topic.
Some of the links to organisations' websites may be repeated in the ‘Key organisations’ section of this navigator in recognition of the important role these organisations play in support for people living with cancer.
An interactive web portal that guides you through the specific steps and recommended care for each stage of breast cancer treatment. This is particularly useful as background information before discussions with your treatment team. Click the link to download as a printable fact sheet.
Information for Aboriginal and Torres Strait Islander people who have cancer. This document describes the care that should be provided at each step of the cancer pathway in Australia. It is the patient’s version of the Optimal Care Pathways for health professionals. Includes links for support and information. Also available as a PDF fact sheet.
In this 6th episode of the 'The thing about cancer' podcast, Julie McCrossin and Professor Lyndal Trevena discuss the process of making treatment decisions.
Episode 1 of this podcast explains the role of the cancer nurses working on the Cancer Council telephone service, who can provide a reliable source of information if questions arise.
The section on 'Making decisions about your health' on the Jean Hailes website includes information on choosing a doctor, evaluating the validity of online information, and questions to consider when making a health-related decision. The website also contains a large range of information and resources on women's health and well-being.
Formerly the My Journey Kit, this tool is now online. Sign up to access information that can be tailored to your own situation. Find information on decision making in the 'Health system and your choices' section, as well as the 'Treatment' section.
In episode 5 of this podcast an Aboriginal Support Worker and two practice nurses discuss the extra supports available for people from Aboriginal and Torres Strait Islander communities undergoing cancer treatment.
Two online tools are available on the Ottawa Hospital Research Institute website to aid in decision making around tough health issues. The aids include a personal decision making guide to complete individually, and a family decision making guide to complete with a family member. The tool helps to identify your knowledge, values, support and level of certainty when faced with decisions. The tool can be completed online and printed off.
This page of the Cancer Council Victoria website has information on managing 'unhelpful' thinking that can lead to worry, anxiety and despondency. Scroll down to 'Treatment decisions'.
An explanation of what you can reasonably expect from the health care system and your treating team. Scroll to the bottom of the page to download or request a copy of the booklet 'Cancer care and your rights' 2019.
Australian government website includes a section on understanding 'Your risk and breast cancer'. The section includes a 'risk calculator' for women who have not had breast or ovarian cancers.
This article, published on the UK medical information website 'Patient.co.uk', provides information on weighing up absolute and relative risk when making decisions about undergoing medical treatment.
The CHF is an Australian peak body organisation representing the interests of health care consumers. The CHF website has a range of fact sheets (under 'publications'), including a consumer guide to clinical trials, how to safely use medications, and how to understand the Medical Benefits Scheme (MBS).
This Australian government website has details on what clinical trials involve, what to consider when deciding whether to go on a trial, and search function to find specific drug trials.
The section 'How to decide whether a clinical trial is right for you?' contains key questions to consider and ask of health practitioners. While this is an American organisation, the types of questions are relevant to an Australian setting. The website also contains information on using complementary therapies.
This webpage on the BCNA website includes information on the link between cancer and family history, what to do reduce your risk of developing cancer, and available resources. BCNA also offer an online forum on this topic.
Not for profit American organisation for women with a BRCA mutation or family history of cancer. The website provides links to news boards and information on research relevant to decision making in this area. A webinar is available on 'Decision making surrounding hereditary cancer' (located under the 'FORCE events' section) which includes discussion on weighing up preventative surgery with other treatment options.
Explanation of what a clinical trial is, and how and why people might choose to take part. Links to current clinical trials.
This print-friendly fact sheet provides tips on finding reliable online health information following your breast cancer diagnosis. Includes a list of some websites that provide good quality information.
Available as a web page or to download as a PDF booklet, this resource explains genetic breast cancer risks in simple language. Includes monitoring information for women who have been found to be at risk, and the role of genetic counselling and testing.
This fact sheet explains when family history may be important in breast cancer risk and the options available if you have concerns about a strong family history. It can be downloaded as a PDF or ordered in hard copy.
This page explains what happens when you see a genetics specialist, including a detailed explanation of the collection of family history. As this resource is UK-focused, treatment and support services are not available to Australians.
Search for genetics services within Victoria. On results pages, services are listed by type and may include a section on ‘Cancer Genetics Clinics’. For services nationwide, scroll down the page to a full list of Australian clinical genetics services.
This page discusses genetic breast cancer risk, with particular emphasis on BRCA1 and BRCA2 gene mutations. Links to further information at the bottom of the page.
This booklet contains information for women who are considering genetic testing for BRCA1 and BRCA2 breast and ovarian cancer that runs in the family.
Scroll down to download a PDF copy of fact sheet number 32. This fact sheet explains how breast and ovarian cancer might be inherited, incidence, and the role of genetic counselling and testing. Focuses on BRCA1 and BRCA2 mutations.