Genetics

Genetics: What does this mean for me and my family?
Ovarian Cancer Australia (AUS)
An explanation of the genetic risks of ovarian cancer. Includes BRCA1 and 2, as well as HNPCC (hereditary nonpolyposis colorectal cancer, also known as Lynch Syndrome), a brief introduction to genetic testing, and a link to a video on prevention of hereditary ovarian cancer.
 (web)

Understanding genetic tests for breast and ovarian cancer that runs in the family: information and decision aid
Centre for Genetics Education, NSW Health (AUS, 2018)
This booklet explains risk, genetics and who might choose to be tested for a faulty BRCA1 and BRCA2 gene.
(64-page booklet available in PDF)

Genetics and risk
Cancer Council Victoria (AUS, 2022)
This page links to resources on risk, genetic testing and a list of familial cancer centres.
(web)

Inherited cancers: Ovarian cancer
Macmillan (UK)
A clear explanation of the genetic risks of ovarian cancer and how family history can be used to assess risk. As this resource is UK-focused, treatment and support services are not available to Australians.
 (web)

Physical aspects: Genetics
Chris O’Brien’s Lifehouse (AUS, 2013)
This video discusses the role of genetics in gynaecological cancers. Includes women discussing their own personal experiences, as well as a specialist nurse and social worker. Includes talking with family members about genetic cancers, and the links between ovarian cancer and BRCA and Lynch Syndrome genes. YouTube sometimes suggests videos on similar topics. Please be aware that these other videos have not been reviewed for the Navigator, and may not be reputable.
 (YouTube video)

What is Lynch Syndrome?
Lynch Syndrome Australia
This website is commonly recommended to Australian patients seeking information on Lynch Syndrome. Includes an explanation of Lynch Syndrome, the risks and how they can be managed.
 (web)

Lynch Syndrome (LS)
Macmillan Cancer Support (UK)
This section of the website explains Lynch Syndrome, how it is inherited and diagnosed, and what screening is available. As this resource is UK-focused, treatment and support services are not available to Australians.
 (web)

Find a genetics clinic
Genetic Support Network of Victoria
Search for a genetics clinic in your area. These are medical clinics that specialise in genetics. They are staffed by clinical geneticists and genetic counsellors.
 (web)