Some people will develop lymphoedema following treatment if lymph nodes have been removed or damaged. The resources below explain what lymphoedema is, signs to look for, and what to do and where to find help if you have it.

Helen Eason & Counterpart (AUS, 2021)
Physiotherapist Helen Eason explains what lymphoedema is, early warning signs, how to minimise the risk, and how to manage it if it develops.

Find an ALA accredited practitioner
Australasian Lymphology Association (AUS)
Use this tool to find a health professional who can help you treat and manage lymphoedema, in a location near you. Explains the types of practitioners and allows you to search by location.
 (web page and search tool)

Lymphoedema: Survive and thrive: Leg
Australasian Lymphology Association (AUS, 2013)
This video empowers women with lymphoedema to understand their care needs and manage their condition themselves, as much as possible. Includes skin care, self massage, exercise and other patients’ experiences.
 (YouTube video or DVD available from ALA or Counterpart library, 40 mins)

Lymphoedema: what you need to know
Cancer Australia (AUS, 2013)
This 18-page booklet provides a good overview of lymphoedema, including signs to watch for, explanation of treatment, tips for self management, and questions you might want to ask your doctor.
  (booklet – PDF or hard copy)

Lymphoedema handbook
Piller, N. et. Al. (AUS, 2006)
Although this book was published in 2006, it has been reviewed by a health professional with a good knowledge of lymphoedema, and most of the information is still relevant. This Australian book explains the lymphatic system, how and why lymphoedema occurs, and how it can be managed.
 (book, available from the Counterpart library)

Macmillan Cancer Support (UK)
This page includes links to information on lymphoedema, its treatment and management. Remember that as this is a UK-based website, treatments and support services are not available to Australians.

Understanding lymphoedema
Macmillan Cancer Support (UK, 2018)
This booklet provides information on reducing your risk of lymphoedema, and treating and managing lymphoedema if it develops.
Remember that as this is a UK-based website, treatments and support services are not available to Australians.
  (126-page e-booklet available in PDF)

Top tips for self-management of lymphoedema
Macmillan Cancer Support (UK)
This booklet was developed as part of a project in Scotland in 2012, with input from people experiencing lymphoedema. It focuses on practical self-care and self-management.
  (35-page booklet in PDF format)

Living with gynaecological cancer part 2.3 – Physical aspects: Lymphoedema
Chris O’Brien Lifehouse (AUS, 2013)
Explanation of the risks for lymphoedema following gynaecological cancer. Includes comments from a young woman who has had cervical cancer discussing how she tries to minimise the risk, a gynaecological cancer nurse and social worker. YouTube sometimes suggests other videos on similar topics. Please be aware that these other videos have not been reviewed for the Navigator and may not be reputable.
 (YouTube video, 4mins 20 secs)

Reducing your risk of lymphedema of the legs
Memorial Sloan Kettering Cancer Center (US, 2016)
Overview of lymphoedema: risk factors and how to avoid them, early signs to watch for, treatment and a video demonstrating some simple exercises. Remember that as this is a US-based website, the support service numbers provided are not available to Australians.
  (web page and video)

Last Updated: 11 November, 2021 2:00 pm