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[email protected]

Melbourne Peer Support Hub
Level 8, 255 Bourke Street, Melbourne
Open 10am – 5pm Mon, Wed, Thurs
(closed public holidays)

What’s new in March

 

CarerHelp invites carers to join their free online sessions 

CarerHelp is now offering free online sessions for families caring for someone nearing the end of life. Led by experienced health professionals, these sessions cover a range of topics and are designed to meet carers where they are on their journey. Upcoming sessions include:

Living beyond loss: Finding your way through grief
🔹March 24, 2pm

For full details and to register visit the CarerHelp website.

 

Webinar: MLL – Rare cancers, not so rare

Join live: Monday 23 March, 1-2pm

Learn how The Stafford Fox Rare Cancer Program is improving treatment options and quality of life for individuals with rare cancers through molecular profiling and testing rational genomically-matched drug combinations in novel preclinical models at this upcoming webinar on 23rd March. 

Find out more and sign up over at the VCCC Alliance website. 

Webinar: Primary Liver Cancer and Cirrhosis, Navigating the Dual Complexities in Cancer Care

Join live: Tuesday 31 March, 7-8pm

In 2025, there were 3,175 new cases of liver cancer and 2,632 deaths from liver cancer in Australia, according to Cancer Australia. The Australian Institute of Health and Welfare (AIHW) also reports that liver cancer is becoming more common each year. In addition, the Liver Foundation says that 1 in 3 Australians has liver disease. 

Because these numbers are rising, it’s important for cancer nurses across Australia to know what causes liver cancer and how they can help their patients. 

To learn more or sign up for the webinar on March 31, visit the Cancer Nurses Society of Australia website. 

Help Shape Better Palliative Care Referrals – 5 Minute Clinician Survey

As part of the Cancer Patient Support Program, the Department of Health, Disability and Aged Care has funded Palliative Care Australia (PCA) in partnership with the Australia New Zealand Society for Palliative Medicine to deliver a project to improve how and when oncologists refer their patients to palliative care (The Cancer Project).

Clinicians are invited to complete a short 5-minute survey on referring patients with incurable malignancy to Specialist Palliative Care. Your insights will help inform the development of future education and support resources. 

Visit  Survey Monkey to take part. 

  

Rural and remote voices wanted for Lung Cancer Screening Program

Expressions of Interest are now open for rural and remote community members to join the Lung Cancer Screening Consumer Committee, a new initiative supporting the National Lung Cancer Screening Program that commenced on 1 July 2025. 

The National Rural Health Alliance and Lung Foundation Australia are seeking members who fit the following criteria: 

  • Aged 50 to 70 years 
  • No current signs or symptoms of lung cancer (e.g., unexplained persistent cough, coughing up blood, unexplained shortness of breath) 
  • Currently smoke tobacco cigarettes or have quit within the past 10 years 
  • A 30 pack‑year smoking history (e.g., one pack a day for 30 years, or two packs a day for 15 years) 

Members will help shape resources tailored for rural and remote communities where lung cancer rates are significantly higher and access to screening is more limited. Committee members will meet online four times over 18 months, with compensation provided for their time. To learn more or submit an expression of interest, visit the Lung Foundation Australia website 

  

Be part of the regional cancer care community

The establishment of the Australian Comprehensive Cancer Network is an important step toward ensuring all patients across Australia, regardless of who they are or where they live, are linked to the best available cancer care as close to home as safely possible.

In Australia, survival rates for most cancers are among the best in the world. However, cancer outcomes are not experienced equally by all people across Australia. There are significant disparities in cancer outcomes for some populations, including people living in rural and remote areas, and Aboriginal and Torres Strait Islander people.

The Australian Comprehensive Cancer Network (ACCN) aims to address these disparities through an integrated national network that connects cancer services all across Australia.

This online community provides a dedicated space for regional and rural cancer care professionals nationwide to share opportunities, discuss clinical questions, exchange ideas, promote research, and access relevant resources.

To participate and make the most of this growing network visit the ACCN website.

 

What’s new in February

What’s new in February, with links to support, information and other items of interest.

CarerHelp invites carers to join their free online sessions 

CarerHelp is now offering free online sessions for families caring for someone nearing the end of life. Led by experienced health professionals, these sessions cover a range of topics and are designed to meet carers where they are on their journey. Upcoming sessions include:

Preparing for caring as illness advances
🔹February 10, 11am
🔹March 10, 11am

Preparing for the last weeks
🔹February 10, 1pm
🔹March 10, 1pm

Living beyond loss: Finding your way through grief
🔹February 24, 2pm
🔹March 24, 2pm

For full details and to register visit the CarerHelp website.

Health professional evaluation survey for cancer nursing and support programs

Health professionals who provide care to people affected by cancer are invited to take part in a survey that aims to improve access to information, navigation and support.

The survey relates to the Australian Cancer Nursing and Navigation Program and the Cancer Patient Support Program. It seeks to understand your awareness of these Programs and your confidence in using the services and resources they fund.

The Australian Department of Health, Disability and Ageing has engaged Nous Group and Queensland University of Technology to evaluate the Programs. The evaluation will explore how well the funded services support the objectives of the Australian Cancer Plan and the Aboriginal and Torres Strait Islander Cancer Plan.

The survey should take approximately 10 minutes to complete and will close on 6 March 2026.

To read more and take the survey visit the Nous Group website.

Early palliative care improves outcomes for people with cancer, study finds

A new study, just published in the Medical Journal of Australia, shows that early access to palliative care can make a significant difference to the quality of end-of-life care for people dying of cancer in Victoria.

The population-based study analysed health records for more than 53,000 adults who died from cancer in Victoria between 2018 and 2023. Researchers found that while most people (73%) received palliative care at some point, only around one in three received it early-defined as more than three months before death.

The study found that people who received early palliative care were more likely to have an advance care plan and die outside hospital if that was their preference. They were also far less likely to have multiple emergency department visits, hospital admissions, or chemotherapy in the last month of life.

Read the study via the Wiley Online Library.

PROSPCTIVE breast cancer clinical trial 

The PROSPECTIVE clinical trial builds on the success of an earlier study, PROSPECT, which involved participants with a single low-risk breast cancer undergoing an MRI scan before surgery. Findings from the PROSPECT trial were promising: only 1 out of 101 participants experienced a recurrence within the first five years, even without receiving radiotherapy, which was much lower than expected.

PROSPECTIVE is the next phase of this important research and is now open to people who:
– Are aged 50 or over
– Have early breast cancer (confined to the breast and possibly nearby lymph nodes).
– Have had their cancer detected through standard imaging, such as a mammogram, with or without an ultrasound

To learn more about takin part visit the Breast Cancer Trials website.

Cancer survivorship online education program

The Australian Cancer Survivorship Centre’s (ACSC) online education program has been updated and relocated from the eviQ Education platform to the VCCC Alliance – Centre for Cancer Education (CCE). This refreshed 6-module introductory course supports health professionals to better understand and respond to the needs and experiences of cancer survivors. Access practical, evidence-based tools, tips and resources to enhance care.

For more information visit the VCCC website.

EOI: Advancing Cancer Equity Fund

Are you passionate about improving equity in cancer care for underserved communities in Victoria? The VCCC Alliance invites you to apply for the Advancing Cancer Equity (ACE) Fund. Up to $60,000 per project is available, with two projects to be supported, from July 2026 for up to 18 months.

The fund provides early support for innovative, scalable projects that enhance the safety, accessibility, and effectiveness of cancer care for Aboriginal and Torres Strait Islander Peoples, culturally and linguistically diverse (CALD) communities, and regional and rural populations.

Applications are open now, for full details visit the VCCC website.

Webinar: Equity-oriented cancer care: What it is, why it matters, and how systems can respond

Join live: Tuesday 24 February, 12.30pm–1.30pm

This webinar, delivered by the VCCC Alliance and designed for health professionals, explores equity‑oriented cancer care and opportunities for equity‑informed practice, with a focus on people experiencing homelessness and cancer. Discover how cancer care systems can better support this underserved population, who face higher cancer rates and significant barriers to treatment. Join Dr Tara Horrill as she introduces equity‑oriented cancer care and shares practical ways health services can deliver more inclusive, trauma‑informed, and culturally safe support.

To read more and register visit the webinar page

Advancing Equity in Cancer Care Outcomes Symposium

11 March, 9.00am – 3.30pm   |  Melbourne Science Gallery (Melbourne Connect) and Online  |   Audience:  healthcare providers, researchers, communities, and consumers

Victoria is recognised globally for its leading cancer system, yet the benefits of this care are not experienced equally by all Victorians. Where people live, their income, cultural background and how the system responds to them continue to shape cancer care experiences and outcomes.

This upcoming event will bring together leaders, researchers, health workers and community members to explore why equity in cancer care matters and how we can move from awareness to action. Through a keynote address and project presentations, the program will highlight real‑world examples of efforts to assess and address inequities across the cancer care continuum, informed by research, lived experience and practice.

Sally Hasler, CEO of Women’s Health Victoria, will present as part of the program, contributing expertise in gender, inclusion and intersectionality. Co‑chaired by Professor Jennifer Philip and Professor Jacinta Elston, the event aims to strengthen shared understanding, collaboration and momentum toward more equitable cancer care for all Victorians.

View the event page on the VCC website for more information.

Be part of the regional cancer care community

The establishment of the Australian Comprehensive Cancer Network is an important step toward ensuring all patients across Australia, regardless of who they are or where they live, are linked to the best available cancer care as close to home as safely possible.

In Australia, survival rates for most cancers are among the best in the world. However, cancer outcomes are not experienced equally by all people across Australia. There are significant disparities in cancer outcomes for some populations, including people living in rural and remote areas, and Aboriginal and Torres Strait Islander people.

The Australian Comprehensive Cancer Network (ACCN) aims to address these disparities through an integrated national network that connects cancer services all across Australia.

This online community provides a dedicated space for regional and rural cancer care professionals nationwide to share opportunities, discuss clinical questions, exchange ideas, promote research, and access relevant resources.

To participate and make the most of this growing network visit the ACCN website.

 

Ovarian Cancer Awareness Month is happening now

Every February, Counterpart joins others in acknowledging Ovarian Cancer Awareness Month. We support the important work others are doing to educate women about ovarian cancer. We also use this time to talk about the support and information available to women living with ovarian cancer.

Women supporting other women with cancer

When you have been diagnosed with cancer, sometimes you need to talk to someone who has been there. Our Peer Support Volunteers have all women with a lived experience of cancer. They also have been trained to listen and provide emotional or practical support. Depending on what you are looking for, they can help you find information or share what they and other women have found helpful.

Request a call from one of our volunteers.

 
May, a Counterpart volunteer, talks about how the service could have helped her mother, who also had ovarian cancer.

Other ways we support women with ovarian cancer

On our Webinar recordings page, you can watch videos of talks given by experts. These cover a lot of topics, including:

 

You might find our ovarian cancer Navigator helpful if you have been diagnosed with ovarian cancer. It can help you to find reliable, evidence-based information for each stage in the cancer experience (newly diagnosed, during treatment, after treatment, and if you have a recurrence). 

Know the symptoms

Ovarian cancer symptoms can be very vague. Many of the symptoms can also be caused by other conditions, especially in the early stages. This disease affects hundreds of women in Victoria each year. Still, many take a long time to get a diagnosis. That is why Ovarian Cancer Awareness Month is all about letting women know the symptoms.

Infographic with the symptoms of ovarian cancer displayed around a picture of the reproductive system. Text: Ovarian Cancer Symptoms: Fatigue/feeling lethargic; Abdominal or pelvic pain; Urinary changes such as frequency and urgency; Changes is bowel habits; Unexplained weight loss or weight gain; Abdominal bloating or increase in size; Appetite loss, feeling full quickly.

 

According to Cancer Australia, ovarian cancer symptoms can include:

  • feeling bloated
  • pain in your abdomen or pelvic area
  • loss of appetite, feeling full after eating small amounts, or indigestion
  • changes to your toilet habits, such as difficulty urinating, needing to go urgently, or changes in bowel habits
  • unexplained weight loss or gain
  • feeling tired for no reason.

 

You should speak to your doctor if you are concerned about any of these symptoms. Think about using Ovarian Cancer Australia’s symptom diary. This can help you keep track of symptoms and present them to your doctor.

Find more information

 

What’s new in January

What’s new in January, with links to support, information and other items of interest.

Study: National Breast Cancer Support Trial 

Have you completed active breast cancer treatment in the past 3 years? You may be interested in joining this study.

The Daffodil Centre (University of Sydney & Cancer Council NSW) is testing an SMS program to help people with breast cancer feel supported and connected between medical appointments.

Find out more and sign up on the University of Sydney survey site.

Survey: Help to improve cancer care for people born outside Australia 

If you have experience with cancer treatment in Victoria as a person born overseas, you are invited to join an online focus group to help identify where services could be improved. Insights will inform discussions at the VICS Optimal Care Summit in February 2026.

Participants will receive a $50 voucher.

Visit the Victorian Integrated Cancer Services (VICS) website before 23 January.

Breast density and screening: New guidance for GPs

Cancers can be more difficult to detect in dense breast tissue, increasing the chance of a false negative mammogram result. To address this, BreastScreen Victoria now includes information about breast density in mammogram result letters, helping women better understand their breast health and potential risks.

Women with high breast density, classified as BI‑RADS c or d, are encouraged to discuss their results with their GP. To support these conversations, new guidelines have been developed for GPs, outlining when supplemental screening such as ultrasound or MRI may be appropriate based on individual risk factors and clinical judgement.

Regular breast screening remains essential for all eligible women, regardless of breast density, as it plays a crucial role in early detection and treatment of breast cancer.

These guidelines were released in November 2025 by the Australian Government Department of Health, Disability and Ageing and they are available on the department’s website.

 

Survey: Peter MacCallum Cancer Centre – understanding work and cancer

Peter Mac are studying how to help people return to work after cancer treatment. They’re looking to understand what makes it easier or harder for people with cancer to be a part of the workforce. Research is being conducted via a survey and focus groups to help develop a program that supports people into work after cancer treatment.

The survey takes 10 minutes and online focus group is 60 minutes long.

Express your interest before Friday 16 January via the Participant Information Form

Victorian Integrated Cancer Services Colorectal Cancer Action Register 

A statewide consultation last year by the Victorian Integrated Cancer Services (VICS) examined patterns in care and outcomes for colorectal cancer. The VICS have now published on their website a summary of their findings and a VICS Colorectal Cancer Action Register – 29 practical actions that the VICS, their member health services, and lateral partners will use to address unwarranted variations in colorectal cancer care.

If you are involved in care or support for Victorians affected by colorectal cancer, please explore the findings and actions and ask your local Integrated Cancer Service (ICS) about how you can be involved. The more we share these resources, the more momentum we can collectively build toward making a real difference for patients across Victoria.

Webinar – Cancer-related cognitive impairment and you: How to best cope in every day life 

Online   |    24 February 2026     |     12pm-1pm

Thinking and memory problems (cognitive impairment) can occur before, during or after cancer treatment. This education session is a chance to share your experiences with others and find out how and why changes in memory and thinking affect you.

A qualified Occupational Therapist will help you will learn about some simple strategies to help you cope with your cognitive problems in everyday life.

Visit the Peter MacCallum  Cancer Centre website for full details.

VCCC Advancing Equity in Cancer Outcomes Symposium 

The Victorian Comprehensive Cancer Centre (VCCC) Alliance invites you to join them for this landmark event, dedicated to advancing equity in cancer outcomes across Victoria. This event will bring together leaders, educators, researchers, health workers, and the community to prioritise health equity in cancer care.

Where: Melbourne Science Gallery (Melbourne Connect) and Online
When: 11 March 2026
Time: 9am-3.30pm

Visit the VCCC Alliance website for more information.

Rare Cancers Australia Thoracic Cancers Learning Module is now live!  

The latest addition to the Rare Cancers Australia online Education Hub, the thoracic cancers module covers common cancers like lung cancer, as well as rare cancers like mesothelioma, thymic cancers and mediastinal germ cell tumours.

The module includes:
About an hour of video content, broken into four parts
A short quiz to check your knowledge after each part
Downloadable practical resources.

Although it’s targeted at healthcare professionals, the module may be of interest to anyone involved in caring for someone living with a thoracic cancer.

Learn more and request access via the Rare Cancers Australia website.

What’s new in November

What’s new in November, with links to support, information and other items of interest.

Survey Opportunity: Cancer Care Experiences Across Australia

As part of a research project led by the University of Melbourne, this national survey seeks input from patients and carers who have been directly impacted by cancer. It explores experiences throughout the cancer journey including diagnosis, treatment, and post-cancer care.
The insights gathered will help identify gaps in current cancer care models and contribute to the development of more effective practices and policies.
Those eligible are encouraged to participate and share their perspectives to support this important work.

To have your say visit the University of Melbourne survey webpage.

SCAN 2025 is now open – Share your experience as a NET patient, carer, or healthcare professional

The International Neuroendocrine Cancer Alliance (INCA) has launched the Survey of Challenges in Access to Diagnostics and Treatment for NET Patients (SCAN) 2025. They are inviting patients, carers, and healthcare professionals to share their experiences.

By participating, you’ll help identify gaps in care and access, supporting advocacy efforts in Australia and around the world.

  • Open: 1 September – 30 November 2025
  • Available in 15 languages

To learn more or take the survey, visit the INCA website.

Support groups for people affected by rare cancers 

Rare Cancers Australia is offering a range of support groups designed specifically for those impacted by rare cancers. These groups bring together individuals who share lived experiences – creating safe, welcoming spaces to connect, ask questions, share advice, and feel less alone.

Support groups are available for:

  • Specific tumour types
  • Carers
  • People affected by any rare cancer (via the Rare Connect group)
  • Mums facing a cancer diagnosis (Mummy’s Wish group – mum-and-bub friendly)

To view the upcoming support group dates view the flyer here. To register to join the Rare Cancers Australia support group network visit the Rare Cancers Australia website.

Foundations in Cancer Care course

Peter MacCallum Cancer Centre is offering a professional development course tailored for physiotherapists, occupational therapists, exercise physiologists, and allied health assistants—including students in these fields. The course will be held on 13 February 2026, with two delivery options:

  • In-person (includes a hands-on workshop)
  • Online (does not include the workshop)

If this sounds relevant to you or your colleagues, you can register your interest to be notified when more details become available.

To register your interest complete this short form.

WCMICS Annual Forum – Celebrating 20 years 

Celebrate 20 years of impact with the Western & Central Melbourne Integrated Cancer Service (WCMICS) in a special live online broadcast on 20 November, marking two decades of collaboration, innovation, and improved cancer care across Victoria. The event features the premiere of 20 Years of Better Cancer Care, reflections from leaders and clinicians, and inspiring stories from across the network. It’s a powerful look back at the partnerships that shaped WCMICS and a forward glance at the future of integrated cancer care.

Register via the WCMICS Humanitix page.

Transforming breast cancer screening with AI webinar 

In this 30 minute webinar presented by Jean Hailes, Associate Professor Helen Frazer, a Radiologist, Breast Cancer Clinician, and Clinical Director at St Vincent’s BreastScreen and BreastScreen Victoria, explores the current state of breast cancer screening, examines how artificial intelligence (AI) enhances screening accuracy, and considers the evolving role of AI in shaping risk-based, personalised population screening strategies.

You can watch this online via the Jean Hailes for Health website.

Cancer nurses targeting inequity webinar

Join the Victorian Comprehensive Cancer Centre (VCCC) online on 24 November from 1.00pm to 2.00pm for a free webinar presented by Professor Mei Krishnasamy and Holly Chung. They will introduce the Nursing Equity Assessment Tool (NEAT), a new resource that helps nurses identify patients disadvantaged by social determinants of health and connect them to the multidisciplinary support needed for better cancer outcomes. This session is relevant for cancer clinicians, hospital administrators, consumers, researchers, policy makers and equity advocates.

Registration is now open via the VCCC website.

ANZGOG State of the Nation: Uterine Cancers 2025 Report

The State of the Nation: Uterine Cancers 2025 report is the first comprehensive national analysis of uterine cancers in Australia and New Zealand. Drawing on the latest national data, clinical evidence and lived experience, this evidence-based report explores the risk factors, diagnosis, treatment, outcomes, projections, and survivorship of uterine cancers. Importantly, the report also charts a way forward. It identifies priority actions to strengthen prevention, drive earlier detection, improve treatment and deliver equitable care, providing a national roadmap to reduce the rise of uterine cancers, improve outcomes and save lives.

Read the report via the ANZGOG website.

What’s new in October

What’s new in October, with links to support, information and other items of interest.

 

Breast cancer drug Truqap now available on PBS

In a significant step forward for breast cancer care, the federal government has announced that Truqap – a treatment for locally advanced or metastatic breast cancer – will be added to the Pharmaceutical Benefits Scheme (PBS) from Wednesday 1 October, coinciding with the start of Breast Cancer Awareness Month.

This listing means eligible patients will now pay just $31.60 per script, compared to the previous cost of up to $100,000 for a full course of treatment. Health Minister Mark Butler said the decision is expected to benefit around 3,000 Australians each year. It will also improve survival rates for those with metastatic breast cancer.

The move has been welcomed by advocates and clinicians alike, including Metastatic Breast Cancer Action Australia and oncologist Professor Fran Boyle, who noted that Truqap offers a new option that may delay the need for chemotherapy.

Read the media release about Truqap’s addition to the PBS on Health Minister Mark Butler’s website.

Navigating Upper GI Cancer: How Pancare Foundation Can Support 

Pancare Foundation is dedicated to supporting Australians affected by upper GI cancers. They focus on prevention, early detection, personalised treatment and advancing research. Led by people who understand these challenges, they connect patients with care and provide online communities for support.

Watch the recently released Pancare video Navigating Upper GI Cancer: How Pancare Foundation Can Support on YouTube to learn more.

New study on bone health in cancer survivors: your experience matters 

Bone Health in Cancer Survivorship (BHCS) is seeking participants who have previously been diagnosed with cancer to help explore the long-term effects of treatment on bone health. Led by Dr. Lisa Grech in collaboration with Deakin University and Monash University, the study investigates how therapies like chemotherapy, hormone therapy, and glucocorticoids may contribute to osteoporosis and other bone-related issues. Through a short online survey, participants will share their experiences, lifestyle factors, and the support they’ve received, helping researchers assess current practices and identify barriers to effective bone health management. By taking part, you’ll contribute to vital research that could improve care for future cancer patients.

More information and links to the survey can be found on the flyer here.

Living with NETs October sessions 

This four-week online education program has been designed to support individuals diagnosed with neuroendocrine tumours (NETs) and their carers. The program offers practical information about tests and treatments, strategies for managing challenges, and guidance on improving overall wellbeing. It also provides a safe space for sharing experiences, building confidence, and developing self-advocacy skills. Sessions will run online every Tuesday in October from 1.30pm to 3.30pm (AEDT).

Register via the NeuroEndocrine Cancer Australia website

 

We want to know your thoughts about Counterpart!

A woman sitting at a desk typing on a laptop, with a thoughtful expression on her face.Women’s Health Victoria (WHV) has asked New Era Advisory to evaluate our Counterpart service, including understanding the experience of:

  • people who have accessed or used Counterpart’s services
  • health professionals and people who have partnered with us, collaborated with us, or referred people to our Counterpart service
  • our volunteers.

We would appreciate your candid and honest feedback about your experience with Counterpart to help us to improve into the future.

There is no obligation to participate in the evaluation. Your participation is completely voluntary.

Your responses are confidential and will not be shared with Counterpart or WHV staff.

If you have any questions or concerns about the evaluation, please contact Rosie (Evaluator) at [email protected] or Cindy (Counterpart, WHV) at [email protected].

People who have accessed or used Counterpart’s services

If you are experiencing or have experienced cancer and have accessed or used Counterpart’s services, you can provide feedback in two ways:

  • Survey: This online survey for people who have used Counterpart services will take up to 10 minutes to complete. The survey closes on Friday 24 October.
  • Interviews: One-on-one interviews be held between 13–24 October and will take 30 minutes. The interviews will be conducted by New Era Advisory and will be in-person at WHV offices (Level 8, 255 Bourke St, Melbourne) or online (please note places are limited).If you would like to participate in an interview please email [email protected] with your name, email, phone number; preferred day and time for an interview, and whether you can participate in-person or online. We will contact you to arrange an interview.

If during completing the survey, or interview you become uncomfortable or distressed, please reach out to suitable supports around you. These could also include the following hotlines or support services:

  • Counterpart peer support on 1300 781 500 (Mon, Wed, Thurs 9am-5pm)
  • Lifeline on 13 11 14
  • Beyond Blue on 1300 22 4636
  • Cancer Council support line on 13 11 20

Health professionals, referrers, partners and collaborators

If you are a health professional or work for a health/cancer service who has referred people to our Counterpart services, or have partnered or collaborated with us, you can provide feedback through a survey:

Survey: This online survey for health professionals, referrers, partners and collaborators will take up to 10 minutes to complete. The survey closes on Friday 24 October.

Blood Cancer Awareness Month

September is Blood Cancer Awareness Month. According to the Leukaemia Foundation, blood cancer has increased by 47% in Australia in the past 10 years and 51 Australians are diagnosed with blood cancer every day.  

What is blood cancer?

Blood cancer is a type of cancer that begins in the blood-forming tissues, such as the bone marrow, or in the blood itself. It can also start in the lymphatic system, which is part of the immune system. Unlike other cancers that form lumps or tumors, blood cancer affects how blood cells are produced and function.

Types of blood cancer:

  • Leukemia: This type of blood cancer starts in the bone marrow, where blood cells are made. It leads to the production of a large number of abnormal white blood cells. These abnormal cells crowd out healthy blood cells and can cause problems with infection, bleeding, and anemia.
  • Lymphoma: This cancer affects the lymphatic system, which is part of the immune system. The lymphatic system includes lymph nodes and other organs like the spleen and tonsils. Lymphoma starts in the lymphocytes (a type of white blood cell) and can form lumps in lymph nodes or other parts of the body.
  • Myeloma: This cancer affects the plasma cells, which are a type of white blood cell found in the bone marrow. Myeloma leads to the production of abnormal plasma cells that can damage bones and affect blood cell production.

Symptoms

The symptoms of blood cancer can vary depending on the type, but common ones include: 

Blood cancer symptoms Unusual bleeding or bruising. Bone pain. Feeling tired or weak. Fever and night sweats. Swollen lymph nodes or lumps. Frequent infections. Unexplained weight loss. Infographic with icons representing the different symptoms.

Detection

Doctors use several tests to diagnose blood cancer, including: 

  • Blood tests: To check the levels of different blood cells and look for abnormalities. 
  • Bone marrow biopsy: To examine the bone marrow for cancer cells. 
  • Imaging tests: Like x-rays, CT scans, or MRIs to see if cancer has spread. 

Treatment

Treatment for blood cancer depends on the type and stage of the disease. Common treatments include: 

  • Chemotherapy: Powerful drugs that kill cancer cells or stop them from growing. 
  • Radiation therapy: Using high-energy rays to target and kill cancer cells. 
  • Stem cell transplant: Replacing damaged bone marrow with healthy stem cells. 
  • Targeted therapy: Drugs that target specific parts of cancer cells or their environment. 
  • Immunotherapy: Boosting the body’s immune system to help fight cancer. 

Support, resources, further information

Leukaemia Foundation – offers comprehensive support services including practical and emotional care, accommodation, financial assistance, and counselling for blood cancer patients.

Myeloma Australia – supports individuals affected by multiple myeloma by providing patient support, a helpline, and educational resources.

Lymphoma Australia – provides patient and family support, educational resources, and a helpline to those impacted by Lymphoma.

Counterpart – Peer Support Volunteers Talk to a woman who has experienced cancer and has been trained to listen and support others experiencing cancer.   

Counterpart – cancer types Visit the blood cancer section of this page for links to further information and resources. 

What’s new in September

What’s new in September, with links to support, information and other items of interest.

Opportunities and actions to improve care for endometrial cancer

The Victorian Integrated Cancer Services (VICS) have published two key outputs from their recent consultation with clinical experts and people affected by endometrial cancer. An assessment report describes barriers and enablers to delivering optimal care, highlights patient experiences, and identifies 22 unwarranted variations in treatment and outcomes across Victoria. The Endometrial Cancer Action Register lists 32 practical actions that the VICS, their member health services, and other partners can take to address the identified variations and improve quality and equity of care.

You can find both documents, with a video of the consultation co-chairs introducing the action register, on the VICS website.

Have your say: Upper GI cancer support survey

Pancare Foundation is inviting people affected by upper gastrointestinal (GI) cancers—including oesophageal, stomach, liver, biliary, or pancreatic cancer—to take part in an anonymous online survey. Whether you’re a patient, family member, friend, or carer, your feedback will help shape future support services and resources. The survey takes 15–30 minutes and closes at 5pm on 8 September.

Read more and take part via the survey website.

New research sheds light on breast cancer treatment resistance

Scientists at the Garvan Institute have discovered why some common breast cancers stop responding to treatment. They found that a natural stress response in cells—called the JNK pathway—can be switched off in certain cancers. When this happens, treatments that usually stop cancer from growing don’t work as well.

This discovery could help doctors predict which patients might not respond to current therapies and offer them better options. It’s a step toward more personalised treatment for people with estrogen receptor-positive (ER+) breast cancer, which makes up about 70% of all breast cancer cases.

Read the full report on the news and resources page on the Garvan Institute website.

Share your experience: Help researchers understand cancer anxiety

Researchers from the University of Melbourne are inviting participants to take part in a study that explores how psychological factors such as personality traits, emotions, and beliefs may contribute to anxiety, depression, and disordered eating. The study focuses on individuals living with cancer, multiple sclerosis, or an eating disorder, and compares results with those who do not have a chronic illness. Participation involves completing a series of confidential online questionnaires over several months. As a thank you, participants will have the chance to win e-gift cards after each stage of the study. Questionnaires can be completed on a phone or computer, and all data will remain confidential.

Learn more or take part on the Melbourne University study webpage.

Online course for health professionals: Cancer care for older adults

The University of Melbourne is running an online course designed to help health professionals better support older adults diagnosed with cancer. The course covers key topics like communication, treatment planning, psychosocial support, and advanced care needs. It’s ideal for anyone working with older patients, including nurses, GPs, and carers. What’s more, the course is accredited by the Australian College of Nursing and RACGP, offering practical tools and insights to improve care and confidence when supporting older people affected by cancer.

Learn more on the Future Learn website.

Q&A – Side effects of breast cancer treatment

Breast Cancer Trials is hosting a free online Q&A on Wednesday 24th September, 5:00–6:30 PM (AEST), exploring the side effects of breast cancer treatment and the latest research aimed at improving quality of life. Led by a panel of experts and moderated by journalist Annabel Crabb, the session will cover clinical trials, strategies for managing physical and emotional side effects, and insights from lived experience. Open to patients, carers, and health professionals.

Register via the Breast Cancer Trials website.

 

What’s new in August

What’s new in August, with links to support, information and other items of interest.

Navigating Fertility & Menopause During and after Treatment webinar 

Join Lymphoma Australia on Wednesday, 20th August from 4:00pm to 5:30pm (AEST) for a free educational webinar tailored for patients, families, and carers affected by lymphoma. This session will explore fertility preservation for both men and women, how to access relevant services, and ways to manage menopausal symptoms during and after treatment.

Hear from leading specialists:

Aisling Murphy – Clinical Midwife Consultant at the Royal Women’s Hospital, with expertise in fertility preservation and women’s health.

Dr Genia Rozen – Gynaecologist and Fertility Specialist, focusing on medical fertility preservation and the impacts of cancer treatment.

Professor Kate Stern – Head of Reproductive Services at the Royal Women’s Hospital and Clinical Director at Melbourne IVF, with extensive experience in public fertility services and reproductive research.Read more and register on the Lymphoma Australia website.

End-of-Life Essentials video

A new animated video by End-of-Life Essentials at Flinders University helps equip healthcare professionals with the tools to respond to grief with care and confidence.

Developed with bereavement care experts, and shaped by a powerful personal story, this short video is a gentle reminder of the impact we can have in life’s hardest moments.Watch this video on the Vimeo platform

Think Pink Foundation free support

Think Pink Foundation offers a wide range of free programs and services to support individuals affected by breast cancer. These programs are designed to provide emotional, physical, and practical support and are available to patients, families, and carers at any stage of the breast cancer journey.
Some of the key programs on offer include:

      • Support Groups for women, men, and carers
      • Wellness Programs like yoga, pilates, meditation, and massage
      • Health Services including breast care nurse consultations and wig fittings
      • Educational Workshops and cooking demos
      • Special Events like the Day of Indulgence

Most programs are available online, making them accessible from home. To discover all programs visit the Think Pink Foundation website.

Webinars for cancer nurses

The Cancer Nurses Society of Australia (CNSA) offers a professional development webinar series called Tune in Tuesday, designed to provide practical, interactive learning for cancer nurses. These webinars are free for CNSA members and cost $30 + GST per session for non-members. Each session contributes 1 CPD point and is available on-demand for members through the CNSA Member Hub, making it easy to access valuable insights and strategies for multidisciplinary cancer care.

August webinars topics include:

        • 12 August – Beyond Tired: Managing Cancer-Related Fatigue
        • 14 August – Cancer Nurses Day Q&A with HESTA Nurse of the Year winners
        • 19 August – Fertility and Pregnancy-Associated Cancer

      Learn more and register on the Cancer Nurses Society of Australia website.

Lung Cancer Screening Education Hub 

Everything health professionals need to know about the National Lung Cancer Screening Program roll out, all in one place. Access free recordings from our Lung Cancer Screening Symposium, as well as an array of free resources. Be equipped with the knowledge, skills, and strategies to deliver effective, equitable, and culturally safe lung cancer screening and care across diverse communities.

Visit the VCCC website to access the resources.

New Energy Assistance Program 

Victorian health professionals, including GPs and nurses, can now refer patients to the Energy Assistance Program – a free initiative supporting individuals whose health is impacted by living in cold or hot environments. The program offers tailored energy advice and support to help patients live in safer, healthier homes.

Referrals are made via a short online form; There is no cost to the patient or the referring provider. The program is funded by the Victorian Government until December 2025 (with potential extension to December 2026).

Access referral tools, posters, and clinical resources in the VCOSS Warm Winter Digital Resource Pack.

Read the health risks of energy hardship, with supporting research and information on medical concessions via the Health and Energy Hardship Information Page on the VCOSS website.

Responding to Emotions in Cancer Workshop

With the July workshop now fully booked, Cancer Council Victoria will be delivering the same workshop in October. Strengthen your communication skills with the Responding to Emotions in Cancer Workshop, delivered in person by Cancer Council Victoria. This RACP-approved workshop is for trainees and staff to practice responding to emotions using simulated patient scenarios. You’ll receive personalised feedback and build confidence in managing sensitive conversations with patients, families, and carers.

Visit the VCCC Alliance website for more information and bookings.

 

 

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