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[email protected]

Resource Centre
Level 8, 255 Bourke Street, Melbourne
Open 10am – 5pm Mon, Wed, Thurs
(closed public holidays)

Oesophageal cancer: symptoms, reduce risk, and support options

Oesophageal cancer, while not as widely discussed as some other types of cancer, is a serious health condition that affects many Australians each year. Understanding the symptoms, risk factors, and treatments available can make a world of difference in early detection and improving outcomes. The 5-year survival rate for oesophageal cancer, though significantly lower than many other cancers, has improved in recent years, rising from 12% in 1982-1986 to 25% in 2017-2021. (Cancer Council Australia, June 2024)

What is oesophageal cancer?

The oesophagus is the tube that carries food and liquids from your mouth to your stomach. Oesophageal cancer develops when abnormal cells grow uncontrollably in the lining of the oesophagus. These cells can form a tumour that can interfere with swallowing and, in more severe cases, spread to other parts of the body.

There are two main types of oesophageal cancer:

  • Adenocarcinoma: This is the most common type in Western countries, including Australia. It usually starts in the lower part of the oesophagus near the stomach and is often linked to acid reflux or gastroesophageal reflux disease (GERD).
  • Squamous cell carcinoma: This type typically starts in the upper and middle part of the oesophagus and is more common in countries with high rates of tobacco and alcohol consumption.

Prevention: how can you reduce the risk?

There are some risk factors for oesophageal cancer which can be modified.

  • Maintain a healthy weight
  • Quit smoking and limit alcohol intake
  • Manage acid reflux
  • Eat a healthy diet

Taking these steps may not prevent you developing cancer, and some people with multiple risk factors may not ever develop oesophageal cancer. Cancer Australia has more information about risk factors for oesophageal cancer (Cancer Australia, September 2024).

What symptoms should you watch for?

Oesophageal cancer can develop slowly, and the early stages often do not cause noticeable symptoms. However, as the cancer progresses, you may begin to notice the following signs:

oesophageal cancer symptoms graphic. 'Painful, difficulty swallowing. Cough or hoarseness of voice. Ongoing sore throat. Chest pain. New heartburn. Unexplained fatigue. Vomit with blood.'

If you experience any of these symptoms, it’s essential to consult a healthcare professional as soon as possible. Early detection is key to improving the chances of successful treatment. (Cancer Council Australia, February 2025)

Where can you get get support if you are diagnosed?

Pancare Foundationprovides in-depth information on various aspects of oesophageal cancer from symptoms, diagnosis and beyond. They also offer supportive resources and practical guidance to help patients and their loved ones navigate the challenges associated with this type of cancer. Pancare offer support with specialist nurses and the PanSupport Helpline. Their patient handbook is a helpful resource.

GI Cancer InstituteInformation, resources, support group directory, and links, including details on current clinical trials.

Counterpart Peer Support Volunteers Talk to a woman who has experienced cancer and is trained to support others experiencing cancer.

What’s new in April

What’s new in March, with links to support, information and other items of interest.


Out with Cancer – LGBTIQ+ cancer survivorship and care webinar

'VCCC webinar: out with cancer - LGBTIQ+ cancer survivorship and care' text on purple background with image of rainbow flag and stethoscope on top.This online event, presented by Dr Rosalie Power, will explore the unique challenges faced by LGBTIQ+ individuals in cancer care. The findings, based on the Out with Cancer study, are drawn from surveys of 430 LGBTIQ+ cancer patients, 131 informal carers and 357 healthcare professionals.

The session will highlight the alarming levels of distress among LGBTIQ+ cancer patients, which are 3 to 6 times higher than the general population, due to discrimination, minority stress and gaps in care. Despite these barriers, LGBTIQ+ individuals demonstrate remarkable resilience. The webinar will also discuss systemic changes and actionable recommendations to improve the inclusivity of cancer care, while sharing practical resources developed in collaboration with cancer organisations and LGBTIQ+ communities to promote cultural safety for both LGBTIQ+ people and their carers.

Register to attend this session which will be live on 28 April at 1.00pm–2.00pm via the Victorian Comprehensive Cancer Centre Alliance website.


STUDY: improving cancer care in rural and remote health services

'Your story could help improve cancer care.' 'Are you or someone you care for, affected by cancer and live in rural or remote Australia?' with Deakin University logoIf you or someone you care for has experienced cancer treatment in rural or remote Australia, Deakin University and Equitable Cancer Outcomes across Rural and Remote Australia (ECORRA) would appreciate hearing your story. With a genuine rural and remote focus, ECORRA is one of Australia’s leading research groups dedicated to reducing geographical inequities in all areas of cancer care. Taking part in this study would help in their aim at improving cancer care in rural and remote health services.

Learn more about this work on the ECORRA Deakin website or go direct to the study via the Deakin survey website.

 


Two new Optimal Care Pathways under development

New optimal care pathways in developmentCancer Australia is pleased to announce the development of two new Optimal Care Pathways (OCPs): an OCP for older people with cancer, and an OCP for people with rare and less common cancers.
OCPs are guidelines that set the standard for cancer care, ensuring that it’s consistent, safe, high-quality and based on the best available evidence throughout all stages of cancer treatment.

To develop the OCP for older people with cancer, Cancer Australia will be partnering with the Clinical Oncology Society of Australia (COSA). For more information visit Optimal Care Pathway for Older People with Cancer | COSA or contact [email protected]

Cancer Australia is partnering with Rare Cancers Australia (RCA) to develop the OCP for people with rare and less common cancers. For more information, contact RCA at [email protected] or visit Contact us – Rare Cancers Australia.


iCare – support for upper gastrointestinal and hepato-pancreato-biliary cancers

STUDY: iCare portal, a resource for people with upper gastrointestinal or hepato-pancreatic-biliary cancer.iCare is a new interactive web-based portal to improve symptom management and wellbeing for people diagnosed with upper gastrointestinal or hepato-pancreato-biliary cancers and their carers. This personalised program offers a comprehensive selection of interactive modules and provides information and access to resources needed during a cancer diagnosis. Currently seeking input from those who would use the platform, the iCare portal is being trialed among people living with upper gastrointestinal or hepato-pancreato-biliary cancer.

To read more about taking part in this study and to register visit the iCare website today.

 


Lung Cancer Screening Symposium

Text: 'Lung Cancer Screening Symposium' on blue background with graphic of lungs behind.

The Victoria Comprehensive Cancer Centre’s (VCCC) Lung Cancer Screening Symposium is designed to equip health professionals, cancer care advocates and policymakers for the launch of the National Lung Cancer Screening Program in July 2025. This event will provide valuable insights, collaborative strategies, and practical tools to ensure equitable, person-centred screening and follow-up care in metropolitan, regional, and rural areas. Join the symposium to contribute to the nationwide effort to deliver best-practice lung cancer screening and follow-up care. 

Be inspired by expert speakers and engaging panel discussions, led by leaders from the VCCC Alliance and professionals from primary care, lung cancer care, and Aboriginal and Torres Strait Islander health. The symposium will take place on 23 May 2025, from 9.00am to 5.00pm, and is available in a hybrid format. Visit the VCCC event listing for more information.

 


 

What’s new – March 2025

What’s new in March, with links to support, information and other items of interest.


17-23 March is Advance Care Planning week

National advance care planning week. 17-23 MarchAdvance care planning involves making decisions about your future health care in case you become seriously ill and unable to communicate. It ensures that your loved ones and health care providers understand and respect your treatment preferences. Creating a documented plan improves ongoing and end-of-life care, ensures you receive the care you want, and reduces stress and anxiety for both you and your loved ones, especially during the difficult circumstances of being extremely unwell.

Advance Care Planning Australia is here to help you create a plan and offer free starter packs.

Visit the Advance Care Planning Australia website for full details.


Study: Psychosocial care and the role of psychologists at end-of-life

University of Sydney study: Optimising psychosocial care at the end of life: the role of psychologists from primary to specialist care.

The University of Sydney invite you to take part in a study exploring psychosocial care and the role of psychologists at the end-of-life, from the perspectives of patients, carers, psychologists, and other health professionals. Your involvement will help them better understand the role of psychologists in supporting individuals with advanced or incurable illnesses and their carers. This will help improve how services, such as palliative care and oncology clinics, address the psychological needs of patients and families.

Visit the University of Sydney website for more details.


March is Myeloma Awareness Month

March is Myeloma awareness month

Myeloma is a type of cancer that affects plasma cells in the bone marrow, leading to abnormal cell growth and complications like bone damage, kidney issues, and a weakened immune system. The symptoms of myeloma can include bone pain, fatigue, frequent infections, unexplained weight loss, weakness or numbness in the legs, easy bruising or bleeding, high calcium levels (which can cause nausea, constipation, and confusion), and kidney problems.

Myeloma Australia is dedicated to providing specialised support to individuals affected by multiple myeloma. You can speak with a specialist myeloma nurse over the phone, attend support groups all over Victoria and gain access to resources.

For more information visit the Myeloma Australia website.


Are you interested in supporting medical research?

Expression of Interest community advisory boardThe Doherty Institute is currently seeking a community member to join their Community Advisory Board (CAB). The CAB plays a crucial role in supporting the Institute’s work by providing a voice for individuals who have been affected by or are at increased risk of infectious diseases, immune-related disorders, or illnesses where immunotherapy is vital, such as cancer.

In partnership with the Doherty Institute, the CAB offers valuable insights and advice to help improve health outcomes and support the Institute’s overall goals.

Read more information and discover how to express your interest on the Doherty Institute’s Information sheet.


March is Lymphoedema Awareness Month

March is Lymphoedema Awareness Month

Lymphoedema is a condition where swelling occurs due to the buildup of lymph fluid in tissues, often affecting the arms or legs following cancer treatment. This can happen when the lymphatic system is damaged by surgery or radiotherapy, leading to secondary lymphoedema. The lymphatic system plays a crucial role in protecting the body against infections, and when it’s not functioning properly, lymphoedema can develop at any stage of cancer treatment or remission.

Early detection of lymphoedema is essential for managing the condition and reducing its impact, as symptoms like swelling, tightness, and discomfort can worsen over time.

To read more and find out where you can get support visit our Lymphoedema blog post.


Ovarian Cancer Awareness Month is happening now

Every February, Counterpart joins others in acknowledging Ovarian Cancer Awareness Month. We support the important work others are doing to educate women about ovarian cancer. We also use this time to talk about the support and information available to women living with ovarian cancer.

Women supporting other women with cancer

When you have been diagnosed with cancer, sometimes you need to talk to someone who has been there. Our Peer Support Volunteers have all women with a lived experience of cancer. They also have been trained to listen and provide emotional or practical support. Depending on what you are looking for, they can help you find information or share what they and other women have found helpful.

Request a call from one of our volunteers.

 
May, a Counterpart volunteer, talks about how the service could have helped her mother, who also had ovarian cancer.

Other ways we support women with ovarian cancer

On our Webinar recordings page, you can watch videos of talks given by experts. These cover a lot of topics, including:

 

You might find our ovarian cancer Navigator helpful if you have been diagnosed with ovarian cancer. It can help you to find reliable, evidence-based information for each stage in the cancer experience (newly diagnosed, during treatment, after treatment, and if you have a recurrence). 

Know the symptoms

Ovarian cancer symptoms can be very vague. Many of the symptoms can also be caused by other conditions, especially in the early stages. This disease affects hundreds of women in Victoria each year. Still, many take a long time to get a diagnosis. That is why Ovarian Cancer Awareness Month is all about letting women know the symptoms.

Infographic with the symptoms of ovarian cancer displayed around a picture of the reproductive system.
Text: Ovarian Cancer Symptoms: Fatigue/feeling lethargic; Abdominal or pelvic pain; Urinary changes such as frequency and urgency; Changes is bowel habits; Unexplained weight loss or weight gain; Abdominal bloating or increase in size; Appetite loss, feeling full quickly.

 

According to Cancer Australia, ovarian cancer symptoms can include:

  • feeling bloated
  • pain in your abdomen or pelvic area
  • loss of appetite, feeling full after eating small amounts, or indigestion
  • changes to your toilet habits, such as difficulty urinating, needing to go urgently, or changes in bowel habits
  • unexplained weight loss or gain
  • feeling tired for no reason.

 

You should speak to your doctor if you are concerned about any of these symptoms. Think about using Ovarian Cancer Australia’s symptom diary. This can help you keep track of symptoms and present them to your doctor.

Find more information

 

What’s new – February 2025

What’s new in February, with links to support, information and other items of interest.


National Medically Induced Menopause Survey – participants needed

National Medically Induced Menopause Survey. Inherited Cancers, in partnership with Jean Hailes for Women’s Health, is launching the National Medically Induced Menopause Survey to help create the vital resources the community urgently needs. Medically induced menopause impacts many individuals managing ovarian cancer risk, yet accessing clear, relevant, Australia-specific information remains a challenge.

This survey will guide the development of much-needed resources, and participants’ input will be key in shaping the support available for those affected. Please note this survey closes at 5pm on 24 February.

Visit the Medical Menopause Survey Monkey page to participate.


Participants needed for study advanced cancer online support program

Melbourne University, FOCUSauThe FOCUSau study, lead by Melbourne University is recruiting individuals living with advanced cancer and their family carers to evaluate a three-month online support program designed to enhance their wellbeing and quality of life. Participants will work through four guided sessions together over three months. The study will compare those who complete the program with those who do not, with participation in the program being randomly assigned. Both groups will continue receiving usual care from their healthcare team. Participants will complete surveys at the start and end of the study to assess whether the FOCUSau program leads to improvements in wellbeing and quality of life.

Read more and express your interest via the Melbourne University Medical School website


Research project – Coping Strategies and their Perceived Efficacy among Indian Australians with Cancer

online study: How Indian Australians with cancer manage stress. Woman sitting at laptop.Western Sydney University (WSU) is looking for participants for a study on how Indian Australian cancer patients cope with their diagnosis. By completing an online survey, you’ll answer questions about your background, how you manage stress, and how effective these strategies are. At the end of the survey, you can choose to participate in an interview. The findings from this study will help researchers better understand how Indian Australians cope with cancer, which could lead to improvements in healthcare for those facing cancer in this community.

Read the participation sheet and sign up via the Western Sydney University survey.

 


Advance Care Planning webinar

Advance Care Planning webinar and woman at table doing her paperwork.
Are you currently undergoing cancer treatment? If you’re unable to communicate your wishes in the future, who will make decisions about your care?

Join Advance Care Planning Australia and VICS advance care planning consumer advocates on 19 March for a practical webinar that will guide you on how to document your care preferences. This session will cover advance care planning, how to have conversations with loved ones, choosing someone to make decisions on your behalf if you’re unable, and how to record your preferences for future care. Register your interest for this session via the VICS Advance Care Planning form.

 


Pre-conference workshop – Unlocking the power of consumer engagement

National Cancer Survivorship Conference - Pre conference workshopThis pre-conference workshop, co-hosted by Breast Cancer Network Australia (BCNA) and the Clinical Oncology Society of Australia (COSA), offers participants the opportunity to enhance their understanding of consumer engagement in cancer care. Through interactive sessions, attendees will learn about the fundamentals of consumer engagement, including its role in health policy, research, and strategy. Participants will gain practical skills in meaningful engagement, from recruitment and ethical considerations to co-design practices. The workshop will also cover how to measure impact and sustain long-term engagement in cancer care.

Learn more and register on the Cancer Survivorship Conference website.


Leukaemia Foundation online support groups and events

Leukaemia Foundation upcoming events and support groups with tiles of events from their websiteThe Leukaemia Foundation offers several ways for you to connect with others, learn more about blood cancer, and hear from healthcare professionals. Their online support groups, education webinars, and private Facebook groups are moderated by Leukaemia Foundation staff and are open to anyone living with blood cancer, as well as their family and friends, across Australia. No matter where you live, your age, or the stage of blood cancer, you’re welcome to join. These webinars, seminars, and support groups are easy to access via Zoom – all you need is a device such as a smartphone, computer, or laptop and an internet connection.

View the Leukaemia Foundation’s upcoming support groups and webinar events on their calendar, including the next online support group session, Managing Fatigue with Blood Cancer.


What’s new – January 2025

What’s new in January, with links to support, information and other items of interest.


4 February is World Cancer Day.

World Cancer day tile 'United in our challenges, unique in our triumphs'
Everyone experiences cancer differently. This is the message behind the new 2025-2027 World Cancer Day campaign, ‘United by Unique’. Cancer is not just a medical condition, it’s a deeply personal challenge, with each diagnosis carrying a unique story of struggle, strength, healing, and love. Every cancer experience is different, and it will take all of us, united, to build a world where we see the person before the patient. Together, through compassion and understanding, we can achieve the best health outcomes. Visit the World Cancer Day website to discover ways that you can get involved.

 


Cancer Council Australia study – out-of-pocket costs associated with cancer.

woman typing into calculator

The survey aims to gather data on the costs that people have incurred during their care, including the direct and indirect costs, along with the costs associated with their changing financial circumstances. Cancer Council Australia will use the results of this research in their policy and advocacy work to reduce the financial impact of cancer in Australia. The study should take no more than 30 minutes to complete.   

Participants will not be asked to provide any personally identifiable information. Study closes 31 January. 

 Take part in the survey here on Survey Monkey.


Look Good Feel Better free January workshops.

Woman wearing head scarf on laptop at home
The Look Good Feel Better workshops are designed to help participants manage the physical, psychological, and social impacts of cancer treatment. These sessions are open to all Australians undergoing any type of treatment for any type of cancer.  

Upcoming virtual events for January include:  

  • About hair loss, regrowth & colouring, Mon 20 Jan, 12.00pm
  • Wigs and headware, Wed 22 Jan, 11.00am
  • Skincare and makeup workshop, Tues 28th Jan, 7.30pm 

Learn more and register on the Look Good Feel Better workshop webpage.

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