What’s new in April
What’s new in April, with links to support, information and other items of interest.
Out with Cancer – LGBTIQ+ cancer survivorship and care webinar
This online event, presented by Dr Rosalie Power, will explore the unique challenges faced by LGBTIQ+ individuals in cancer care. The findings, based on the Out with Cancer study, are drawn from surveys of 430 LGBTIQ+ cancer patients, 131 informal carers and 357 healthcare professionals.
The session will highlight the alarming levels of distress among LGBTIQ+ cancer patients, which are 3 to 6 times higher than the general population, due to discrimination, minority stress and gaps in care. Despite these barriers, LGBTIQ+ individuals demonstrate remarkable resilience. The webinar will also discuss systemic changes and actionable recommendations to improve the inclusivity of cancer care, while sharing practical resources developed in collaboration with cancer organisations and LGBTIQ+ communities to promote cultural safety for both LGBTIQ+ people and their carers.
Register to attend this session which will be live on 28 April at 1.00pm–2.00pm via the Victorian Comprehensive Cancer Centre Alliance website.
STUDY: improving cancer care in rural and remote health services
If you or someone you care for has experienced cancer treatment in rural or remote Australia, Deakin University and Equitable Cancer Outcomes across Rural and Remote Australia (ECORRA) would appreciate hearing your story. With a genuine rural and remote focus, ECORRA is one of Australia’s leading research groups dedicated to reducing geographical inequities in all areas of cancer care. Taking part in this study would help in their aim at improving cancer care in rural and remote health services.
Learn more about this work on the ECORRA Deakin website or go direct to the study via the Deakin survey website.
Two new Optimal Care Pathways under development
Cancer Australia is pleased to announce the development of two new Optimal Care Pathways (OCPs): an OCP for older people with cancer, and an OCP for people with rare and less common cancers.
OCPs are guidelines that set the standard for cancer care, ensuring that it’s consistent, safe, high-quality and based on the best available evidence throughout all stages of cancer treatment.
To develop the OCP for older people with cancer, Cancer Australia will be partnering with the Clinical Oncology Society of Australia (COSA). For more information visit Optimal Care Pathway for Older People with Cancer | COSA or contact [email protected]
Cancer Australia is partnering with Rare Cancers Australia (RCA) to develop the OCP for people with rare and less common cancers. For more information, contact RCA at [email protected] or visit Contact us – Rare Cancers Australia.
iCare – support for upper gastrointestinal and hepato-pancreato-biliary cancers
iCare is a new interactive web-based portal to improve symptom management and wellbeing for people diagnosed with upper gastrointestinal or hepato-pancreato-biliary cancers and their carers. This personalised program offers a comprehensive selection of interactive modules and provides information and access to resources needed during a cancer diagnosis. Currently seeking input from those who would use the platform, the iCare portal is being trialed among people living with upper gastrointestinal or hepato-pancreato-biliary cancer.
To read more about taking part in this study and to register visit the iCare website today.
Lung Cancer Screening Symposium
The Victoria Comprehensive Cancer Centre’s (VCCC) Lung Cancer Screening Symposium is designed to equip health professionals, cancer care advocates and policymakers for the launch of the National Lung Cancer Screening Program in July 2025. This event will provide valuable insights, collaborative strategies, and practical tools to ensure equitable, person-centred screening and follow-up care in metropolitan, regional, and rural areas. Join the symposium to contribute to the nationwide effort to deliver best-practice lung cancer screening and follow-up care.
Be inspired by expert speakers and engaging panel discussions, led by leaders from the VCCC Alliance and professionals from primary care, lung cancer care, and Aboriginal and Torres Strait Islander health. The symposium will take place on 23 May 2025, from 9.00am to 5.00pm, and is available in a hybrid format. Visit the VCCC event listing for more information.
Advance care planning involves making decisions about your future health care in case you become seriously ill and unable to communicate. It ensures that your loved ones and health care providers understand and respect your treatment preferences. Creating a documented plan improves ongoing and end-of-life care, ensures you receive the care you want, and reduces stress and anxiety for both you and your loved ones, especially during the difficult circumstances of being extremely unwell.
The Doherty Institute is currently seeking a community member to join their Community Advisory Board (CAB). The CAB plays a crucial role in supporting the Institute’s work by providing a voice for individuals who have been affected by or are at increased risk of infectious diseases, immune-related disorders, or illnesses where immunotherapy is vital, such as cancer.
Inherited Cancers, in partnership with Jean Hailes for Women’s Health, is launching the National Medically Induced Menopause Survey to help create the vital resources the community urgently needs. Medically induced menopause impacts many individuals managing ovarian cancer risk, yet accessing clear, relevant, Australia-specific information remains a challenge.
The FOCUSau study, lead by Melbourne University is recruiting individuals living with advanced cancer and their family carers to evaluate a three-month online support program designed to enhance their wellbeing and quality of life. Participants will work through four guided sessions together over three months. The study will compare those who complete the program with those who do not, with participation in the program being randomly assigned. Both groups will continue receiving usual care from their healthcare team. Participants will complete surveys at the start and end of the study to assess whether the FOCUSau program leads to improvements in wellbeing and quality of life.
Western Sydney University (WSU) is looking for participants for a study on how Indian Australian cancer patients cope with their diagnosis. By completing an online survey, you’ll answer questions about your background, how you manage stress, and how effective these strategies are. At the end of the survey, you can choose to participate in an interview. The findings from this study will help researchers better understand how Indian Australians cope with cancer, which could lead to improvements in healthcare for those facing cancer in this community.
This pre-conference workshop, co-hosted by Breast Cancer Network Australia (BCNA) and the Clinical Oncology Society of Australia (COSA), offers participants the opportunity to enhance their understanding of consumer engagement in cancer care. Through interactive sessions, attendees will learn about the fundamentals of consumer engagement, including its role in health policy, research, and strategy. Participants will gain practical skills in meaningful engagement, from recruitment and ethical considerations to co-design practices. The workshop will also cover how to measure impact and sustain long-term engagement in cancer care.
The Leukaemia Foundation offers several ways for you to connect with others, learn more about blood cancer, and hear from healthcare professionals. Their online support groups, education webinars, and private Facebook groups are moderated by Leukaemia Foundation staff and are open to anyone living with blood cancer, as well as their family and friends, across Australia. No matter where you live, your age, or the stage of blood cancer, you’re welcome to join. These webinars, seminars, and support groups are easy to access via Zoom – all you need is a device such as a smartphone, computer, or laptop and an internet connection.
