What’s new – March 2025
What’s new in March, with links to support, information and other items of interest.
17-23 March is Advance Care Planning week
Advance care planning involves making decisions about your future health care in case you become seriously ill and unable to communicate. It ensures that your loved ones and health care providers understand and respect your treatment preferences. Creating a documented plan improves ongoing and end-of-life care, ensures you receive the care you want, and reduces stress and anxiety for both you and your loved ones, especially during the difficult circumstances of being extremely unwell.
Advance Care Planning Australia is here to help you create a plan and offer free starter packs.
Visit the Advance Care Planning Australia website for full details.
Study: Psychosocial care and the role of psychologists at end-of-life
The University of Sydney invite you to take part in a study exploring psychosocial care and the role of psychologists at the end-of-life, from the perspectives of patients, carers, psychologists, and other health professionals. Your involvement will help them better understand the role of psychologists in supporting individuals with advanced or incurable illnesses and their carers. This will help improve how services, such as palliative care and oncology clinics, address the psychological needs of patients and families.
Visit the University of Sydney website for more details.
March is Myeloma Awareness Month
Myeloma is a type of cancer that affects plasma cells in the bone marrow, leading to abnormal cell growth and complications like bone damage, kidney issues, and a weakened immune system. The symptoms of myeloma can include bone pain, fatigue, frequent infections, unexplained weight loss, weakness or numbness in the legs, easy bruising or bleeding, high calcium levels (which can cause nausea, constipation, and confusion), and kidney problems.
Myeloma Australia is dedicated to providing specialised support to individuals affected by multiple myeloma. You can speak with a specialist myeloma nurse over the phone, attend support groups all over Victoria and gain access to resources.
For more information visit the Myeloma Australia website.
Are you interested in supporting medical research?
The Doherty Institute is currently seeking a community member to join their Community Advisory Board (CAB). The CAB plays a crucial role in supporting the Institute’s work by providing a voice for individuals who have been affected by or are at increased risk of infectious diseases, immune-related disorders, or illnesses where immunotherapy is vital, such as cancer.
In partnership with the Doherty Institute, the CAB offers valuable insights and advice to help improve health outcomes and support the Institute’s overall goals.
Read more information and discover how to express your interest on the Doherty Institute’s Information sheet.
March is Lymphoedema Awareness Month
Lymphoedema is a condition where swelling occurs due to the buildup of lymph fluid in tissues, often affecting the arms or legs following cancer treatment. This can happen when the lymphatic system is damaged by surgery or radiotherapy, leading to secondary lymphoedema. The lymphatic system plays a crucial role in protecting the body against infections, and when it’s not functioning properly, lymphoedema can develop at any stage of cancer treatment or remission.
Early detection of lymphoedema is essential for managing the condition and reducing its impact, as symptoms like swelling, tightness, and discomfort can worsen over time.
To read more and find out where you can get support visit our Lymphoedema blog post.
Inherited Cancers, in partnership with Jean Hailes for Women’s Health, is launching the National Medically Induced Menopause Survey to help create the vital resources the community urgently needs. Medically induced menopause impacts many individuals managing ovarian cancer risk, yet accessing clear, relevant, Australia-specific information remains a challenge.
The FOCUSau study, lead by Melbourne University is recruiting individuals living with advanced cancer and their family carers to evaluate a three-month online support program designed to enhance their wellbeing and quality of life. Participants will work through four guided sessions together over three months. The study will compare those who complete the program with those who do not, with participation in the program being randomly assigned. Both groups will continue receiving usual care from their healthcare team. Participants will complete surveys at the start and end of the study to assess whether the FOCUSau program leads to improvements in wellbeing and quality of life.
Western Sydney University (WSU) is looking for participants for a study on how Indian Australian cancer patients cope with their diagnosis. By completing an online survey, you’ll answer questions about your background, how you manage stress, and how effective these strategies are. At the end of the survey, you can choose to participate in an interview. The findings from this study will help researchers better understand how Indian Australians cope with cancer, which could lead to improvements in healthcare for those facing cancer in this community.
This pre-conference workshop, co-hosted by Breast Cancer Network Australia (BCNA) and the Clinical Oncology Society of Australia (COSA), offers participants the opportunity to enhance their understanding of consumer engagement in cancer care. Through interactive sessions, attendees will learn about the fundamentals of consumer engagement, including its role in health policy, research, and strategy. Participants will gain practical skills in meaningful engagement, from recruitment and ethical considerations to co-design practices. The workshop will also cover how to measure impact and sustain long-term engagement in cancer care.
The Leukaemia Foundation offers several ways for you to connect with others, learn more about blood cancer, and hear from healthcare professionals. Their online support groups, education webinars, and private Facebook groups are moderated by Leukaemia Foundation staff and are open to anyone living with blood cancer, as well as their family and friends, across Australia. No matter where you live, your age, or the stage of blood cancer, you’re welcome to join. These webinars, seminars, and support groups are easy to access via Zoom – all you need is a device such as a smartphone, computer, or laptop and an internet connection.
