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[email protected]

Resource Centre
Level 2, 210 Lonsdale Street, Melbourne
Open 10am – 5pm Mon, Wed, Thurs
(closed public holidays)

What’s new – November 2024

What’s new in November, with links to support, information and other items of interest.


10 November was Neuroendocrine Cancer Awareness Day. 

Neuroendocrine tumours (NETs) are the seventh most commonly diagnosed cancer in Australia, and the number is growing. It is more common than brain, ovarian, or cervical cancer but will often go undetected for many years. Neuroendocrine cancer has vague symptoms that can be misdiagnosed with conditions like IBS, asthma, or menopause.  

Neuroendocine Cancer Australia offers resources for patients, caregivers, and healthcare professionals, including educational materials, advocacy, and connecting the community. They provide support through speaking with an NET nurse and joining support groups. Learn more on the Neuroendocrine Cancer Australia website


Inherited Cancers Australia 

Words from Inherited Cancers Australia (ICA) website - 'Breaking the cycle of inherited cancer in Australian families' and the ICA logo

Inherited Cancers Australia provides support, education, and advocacy for individuals and families affected by hereditary cancers. They raise awareness about genetic predispositions to cancer, offer resources for those undergoing genetic testing, and facilitate connections among patients, families, and healthcare professionals. ICA also focuses on promoting research into inherited cancers and ensuring that those at risk have access to appropriate screening and preventative measures, thereby empowering individuals with the knowledge to make informed decisions about their health. Some ways you can access support include asking a specialist or joining an online support group. 

For further information visit the Inherited Cancers Australia website.  


Help Victorian health services improve care for people with colorectal cancer

Do you or someone you care for have an experience with colorectal cancer? The Victorian Integrated Cancer Services (VICS) need your input to a statewide consultation on quality and equity of care.

Your stories, experiences, and voice will be important in improving colorectal cancer services across Victoria, through the VICS network of 122 hospitals and other health providers. You can help to identify areas where services could be improved, to better meet the needs of people affected by colorectal cancer and their carers, by participating in a short call or online focus group.

The findings from the focus group(s) will be presented at a VICS Optimal Care Summit in February 2025. The VICS Optimal Care Summits program aims to ensure that all Victorians with colorectal cancer receive optimal care. For more information, visit the VICS website.

If you are interested in participating, please email Helena Rodi at [email protected] or call 0412 611 713.


Victorian Women’s Health Atlas updates

Image features map of Victoria with local government areas in different colors to reflect difference in cervical screening rates.

The Atlas displays health and social wellbeing indicators by sex for every local government area in Victoria. The platform contains 75 indicators from a range of government and other sources, grouped into 8 priority health areas.

The platform has had a major refresh, with 15 indicators updated with recent data, new 5-year cervical screening data info added, and data on hysterectomy and endometriosis separations included for the first time. New data shows that cervical screening varies depending on where you live.

Explore the Victorian Women’s Health Atlas via the main Women’s Health Victoria website


10–16 November – Cervical Cancer Awareness Week

Tile says 'Cervical Cancer Awareness Week, 10-16 November.' It features the Women's Health Victoria and Counterpart logos.

In Australia, cervical cancer is the 13th most common cancer in women (globally, it’s the fourth most common). It is also one of the most preventable – through cervical screening and the HPV vaccine.

In Australia, the 5-year survival rate for cervical cancer is 74% for those diagnosed. If you’ve just been diagnosed, are currently undergoing treatment, or are living life after treatment, you may find the cervical cancer section of the Counterpart Navigator helpful. It includes information and links on practical, emotional support, personal stories and more.

Visit the Counterpart Navigator online to discover more.   


Look Good Feel Better online and face-to-face free workshops

Tile says 'Free workshops' and features the Look Good Feel Better logo underneath.

The Look Good Feel Better workshops help participants manage the physical, psychological, and social impacts of cancer treatment. They are open to all Australians undergoing any type of treatment for any type of cancer. These workshops cover topics from skincare, cosmetics, and headwear options, through to grooming, fitness, mobility, and mental wellbeing. In providing practical tips and tools, they help connect a community of people living a shared experience; empowering them to regain control, confidence, and a sense of self.

To see the upcoming program of events visit the Look Good Feel Better registration page on their website.

 

Portland to host free Wellbeing Day for women with cancer

MEDIA RELEASE

– for immediate release –

Counterpart – a statewide service of Women’s Health Victoria that supports and informs women with cancer to live well – is partnering with Portland District Health and Barwon South Western Regional Integrated Cancer Service to organise a free Wellbeing Day for women who have experienced cancer. This free event will be held in Portland on Friday 8 November.

The day will include an information session on nutrition in cancer treatment presented by a dietician, followed by a gentle Tai Chi workshop and finishing with relaxing sound meditation. Lunch will be provided and there will be opportunities for participants to connect over a cuppa.

Counterpart, in partnership with other regional health services, has run successful Wellbeing Days across Victoria. These have all received positive feedback from participants. “It was very informative, inclusive and good to connect with fellow patients and carers” said one woman who attended in Wodonga in May.

Counterpart Manager Cindy Van Rooy said, “Counterpart provides peer support and information to women with cancer who are living across Victoria. We are so happy to be providing this opportunity for women in the Portland region to make connections and learn new ways to care for their wellbeing. We are pleased to partner with Portland District Health and Barwon South Western Regional Integrated Cancer Service and grateful to the Victorian Government for funding this event”.

The Portland Wellbeing Day is free for women who have had any type of cancer and their partners, family or friends. Bookings are essential and can be made online at counterpart.org.au/events or by calling Counterpart on 1300 781 500. Registrations close at 12 noon on Thursday 31 October.

To find out more about Counterpart’s other services visit counterpart.org.au

– Ends –

Media inquiries:

For media inquiries, please contact Counterpart Communications Coordinator, Katherine Bradstreet, [email protected].

Available for interview:

Cindy Van Rooy, Manager, Counterpart

About Women’s Health Victoria

Women’s Health Victoria is a statewide, feminist, non-profit organisation working with government, the health sector and the community to improve health outcomes for women (cis and trans inclusive) and gender diverse people. We advocate for healthcare rights and access, deliver health promotion resources, and operate vital information and support services, so that all Victorians have the opportunity to access optimal health and wellbeing, free from bias and discrimination. For more information, visit whv.org.au

What’s new – October 2024

What’s new in October, with links to support, information and other items of interest.


Study: what is your experience of caring for someone with cancer?  

woman in headscarf sits with another woman showing support and care by having her arms around her shoulders.

If you live in Australia, are over 18, and are providing, or have provided support to someone facing cancer within the last 5 years, Cancer Carer Hub and Deakin University would love to hear from you. 

This study aims to understand the experiences and support needs of all carers and support persons, with focus on those from different groups including regional or rural communities, those from a non-English speaking background and those who identify as member of the LGBTQIA+ community. Findings will be used to develop resources and services to better support carers from all communities.  

To learn more and participate visit the study website.


13 October – Metastatic Breast Cancer Awareness Day 

woman in headscarf sits in hospital bed looking out the window.

Also called stage IV (4) breast cancer, or advanced breast cancer, metastatic breast cancer is a form of cancer that has spread beyond the breast to other organs in the body, such as the bones, lungs, liver or, less commonly, brain. Because of its advanced stage, it is incurable, so the focus of treatment is on controlling the disease, quality of life and symptom management, often over the course of many years. 

If you or someone you know is affected by Metastatic Breast Cancer they may be interested to learn about this list of resources and information on how to access support. Visit our Information for women with advanced/metastatic cancer page


It’s National Carers Week 

National Carers Week branded image. Image of side profile older woman smiling with a younger woman. 'Millions of reasons to care' slogan in bold with the date and website address.

National Carers Week takes place on 13–19 October. It is a time to recognise and celebrate the invaluable contributions of Australia’s unpaid carers. More than one in ten Australians are carers therefore, they make an enormous contribution to our community. Help raise awareness this National Carers Week by inviting workmates, friends and family to an event to raise awareness of the diversity of carers and caring roles in Australia. 

Discover ways you can get involved in National Carers Week. There are a number of events happening all over the state for carers visit the events section to find an event. near you. 


Head and Neck Cancer Australia’s lymphoedema webinar 

Lymphoedema in legs and ankles.

In this recording Dr Amanda Pigott, a specialist in lymphoedema therapy, provided an in-depth overview of the condition. She highlighted that lymphoedema is often underdiagnosed, underscoring the need for increased awareness and early detection. Dr Pigott advocates for a multimodal treatment approach that incorporates professional care and self-management strategies. In this video techniques such as manual lymphatic drainage and compression therapy are covered, supported by insights from former patient Janet Curran, who shares her experiences with lymphoedema after oral cancer treatment in 2023.

Watch the webinar on Head and Neck Cancer Australia’s Youtube channel. Visit the Head and Neck cancer Australia webinar library to watch recordings on a number of topics.  


Head and Neck Cancer GP and Dentist Education module  

GP examines patients neck

The Changing Face of Head and Neck Cancer educational initiative is accredited by the Royal Australian College of GPs and the Australian College of Rural and Remote Medicine, and it is endorsed by the Australian Dental Association. This online learning activity is available to all dentists and GPs in Australia. 

Through this module, GPs will learn to perform oral and neck examinations to identify signs of head and neck cancer. Dentists will be equipped to conduct oral and extraoral examinations to screen for oral and related malignancies. 

Find out more and complete this module on the Arterial Education website.

Blood Cancer Awareness Month

According to the Leukaemia Foundation, blood cancer has increased by 47% in Australia in the past 10 years and 51 Australians are diagnosed with blood cancer every day.  

What is blood cancer?

Blood cancer is a type of cancer that begins in the blood-forming tissues, such as the bone marrow, or in the blood itself. It can also start in the lymphatic system, which is part of the immune system. Unlike other cancers that form lumps or tumors, blood cancer affects how blood cells are produced and function.

Types of blood cancer:

  • Leukemia: This type of blood cancer starts in the bone marrow, where blood cells are made. It leads to the production of a large number of abnormal white blood cells. These abnormal cells crowd out healthy blood cells and can cause problems with infection, bleeding, and anemia.
  • Lymphoma: This cancer affects the lymphatic system, which is part of the immune system. The lymphatic system includes lymph nodes and other organs like the spleen and tonsils. Lymphoma starts in the lymphocytes (a type of white blood cell) and can form lumps in lymph nodes or other parts of the body.
  • Myeloma: This cancer affects the plasma cells, which are a type of white blood cell found in the bone marrow. Myeloma leads to the production of abnormal plasma cells that can damage bones and affect blood cell production.

Symptoms

The symptoms of blood cancer can vary depending on the type, but common ones include: 

Detection

Doctors use several tests to diagnose blood cancer, including: 

  • Blood tests: To check the levels of different blood cells and look for abnormalities. 
  • Bone marrow biopsy: To examine the bone marrow for cancer cells. 
  • Imaging tests: Like x-rays, CT scans, or MRIs to see if cancer has spread. 

Treatment

Treatment for blood cancer depends on the type and stage of the disease. Common treatments include: 

  • Chemotherapy: Powerful drugs that kill cancer cells or stop them from growing. 
  • Radiation therapy: Using high-energy rays to target and kill cancer cells. 
  • Stem cell transplant: Replacing damaged bone marrow with healthy stem cells. 
  • Targeted therapy: Drugs that target specific parts of cancer cells or their environment. 
  • Immunotherapy: Boosting the body’s immune system to help fight cancer. 

Support, resources, further information

Leukaemia Foundation – offers comprehensive support services including practical and emotional care, accommodation, financial assistance, and counselling for blood cancer patients.

Myeloma Australia – supports individuals affected by multiple myeloma by providing patient support, a helpline, and educational resources.

Lymphoma Australia – provides patient and family support, educational resources, and a helpline to those impacted by Lymphoma.

Counterpart – Peer Support Volunteers Talk to a woman who has experienced cancer and has been trained to listen and support others experiencing cancer.   

Counterpart – cancer types Visit the blood cancer section of this page for links to further information and resources. 

What’s new – September 2024

What’s new in September, with links to support, information and other items of interest.


September is Gynaecological Cancer Awareness Month  

Gyneacological Cancer Awareness Month, observed in September, aims to raise awareness about cancers that affect the female reproductive system. This includes ovarian, cervical, uterine, vulvar, and vaginal cancers. This month focuses on early detection and support for women, promoting regular screenings and discussions about symptoms and risks. Each type of gynaecological cancer has distinct symptoms and risk factors. Early detection is crucial for effective treatment and improved outcomes. 

Learn more and find resources on the Australian Gynaecological Cancer Foundation website and our Counterpart Navigators


September is Blood Cancer Awareness Month

According to the Leukaemia Foundation, 1 in 12 Australians will be diagnosed with blood cancer, however, awareness is still incredibly low. Nationally, 17 people lose their lives to blood cancer every day. Many of these deaths are preventable.  Blood cancer affects the blood, bone marrow, and lymphatic system. Common types include leukemia, lymphoma, and myeloma, each impacting the body’s ability to produce healthy blood cells.

Read more about blood cancer including symptoms, treatment and where to get support via our blog post.


September is Lymphoma Awareness Month 

Lymphoma is a type of cancer that originates in the lymphatic system, a crucial part of the body’s immune system. It affects the lymph nodes, spleen, and other lymphatic tissues. There are two main types of lymphoma: Hodgkin lymphoma (HL) and non-Hodgkin lymphoma (NHL). Hodgkin lymphoma is marked by Reed-Sternberg cells. Non-Hodgkin lymphoma includes various types that do not contain these cells. Symptoms can include swollen lymph nodes, unexplained weight loss, fever, and night sweats. Treatment often involves a combination of chemotherapy, radiation therapy, and sometimes targeted therapies or immunotherapy, depending on the type and stage of the disease. 

Get all the information, resources and support on the Lymphoma Australia website.


Study: Supportive cancer care

Have you had treatment for any type of cancer? Join this study to help shape the future of supportive cancer care.

The project aims to co-design a model for supportive cancer care by a all cancer nurse service in Australia.

Anyone diagnosed with any form of cancer, past or present, and their carers are welcome to take part in this study.

Read more on the Ethicol flyer here.


Webinar – Learn about Cancer Council Victoria’s support services available to your patients.

On 30 September, VCCC Alliance is hosting a lunch and learn session for clinicians, GPs, doctors, nurses, and allied health professionals to share information about services offered by Cancer Council Victoria. Participants will learn about the 13 11 20 cancer information and support line, as well as the psychological and emotional support provided through the Nurse Counselling Service.

This webinar aims to offer comprehensive help through various resources, ensuring that those affected by cancer can find the necessary support to manage their experience effectively.

Read more and register on the VCCC website.

What’s new – August 2024

What’s new in August, with links to support, information and other items of interest.


Lymphoedema Association info day

This event taking place on 12 October from 9am to 3pm includes several presentations on topics relevant to living with lymphoedema including nutrition and lymphoedema, stretches, the lymphoedema toolbox and more. It is also an opportunity to discover new products and services through the trade exhibits and a chance to connect with others who live with this condition.

For the full program and ticket pricing visit the Lymphoedema Australia website.  


Lung Cancer Screening Program update and support

World Lung Cancer Day took place on 1 August. Lung cancer is often discovered in its advanced stages resulting in a poor survival rate. The Australian Government is currently working on a National Lung Cancer Screening Program, available to eligible populations in July 2025.

If you or someone you know has been diagnosed with lung cancer you may like to contact a Lung Foundation Australia Lung Cancer Support Nurse. This free telephone service is for people living with lung cancer, their families and carers, at any stage of diagnosis. 


Occupational lung cancer study

The Lung Foundation Australia invites you to take part in a study about occupational lung disease if you meet any of the following criteria:

  • You live with or care for someone with occupational lung cancer.
  • You are at high risk for occupational lung cancer.
  • You are a health professional working with individuals diagnosed with occupational lung cancer.

This study gathers priorities from those affected by occupational lung cancer to guide research funds and efforts to key areas.

Visit the research listing for full details.


Cancer Wellness Program  

This free online event organised by The Australian Cancer Survivorship Centre (ACSC) and Cancer Council Victoria (CCV) is open to those who have completed cancer treatment. A carer, family member or friend is also welcome to attend. This event, on Friday 13 September at 11.00am-12.30pm includes expert speakers and people with lived experience. There is a range of topics covered, including Working with your GP, Exercise and Emotional Health and Cancer Clinical Trials. 

To read more about the webinar and register visit the Zoom event listing


Don’t Forget My Pet Foundation

Don’t Forget My Pet Foundation, is a registered charity currently based in Geelong (with plans to expand in 2025), helping people over 65 and people facing social isolation, illness, disability, or mental health issues keep their companion animals. The organisation’s founder, Alysha discovered that there is no in-home care package to support the needs of people’s animals and they are such a vital part of people’s recovery and lives. Don’t Forget My Pet bridges this gap, ensuring people don’t have to choose between getting care for themselves and looking after their animals. They offer services like walking, feeding, and caring for pets when owners are unable to. 

Visit the Don’t Forget My Pet website for more information.


Rural Women Online 

The programs facilitated by Rural Women Online provide women with the opportunity to come together and learn digital skills. They recently held sessions in Greater Shepparton and have various sessions taking place in North East Victoria in September. They also have some very helpful how to guides and videos in their resources section covering multiple areas of online safety and general skills including creating your MyGov account, connecting to Zoom, setting up a website, Microsoft applications and more.  

Discover more at Rural Women Online.

What’s new – July 2024

What’s new in July, with links to support, information and other items of interest.


Free webinar: Lymphoedema & Head and Neck Cancer  

Head and Neck Cancer Australia are holding a webinar about head and neck lymphoedema. Join Guest Speaker, Dr Amanda Pigott on Thursday 1 August at 12pm to learn why head and neck lymphoedema occurs, how it can affect people and how it can be managed. If you are a patient experiencing lymphoedema and would like to join our panel to share your experience, contact Head and Neck Cancer Australia via email: [email protected].

Register for the free Head and Neck Cancer Australia webinar. 


July is Sarcoma Awareness Month 

Sarcoma is the term given to a broad group of cancers that can start in the bones and soft tissue. They can form anywhere in the body and at any age and are often misdiagnosed. The Australia and New Zealand Sarcoma Association (ANZSA) is the peak body for the sarcoma community. ANZSA seeks to improve outcomes for sarcoma patients through research, education and awareness.  

To find out more about sarcoma, to locate a sarcoma specialist or to read stories from others with sarcoma visit the ANZSA website.


Free support group for partners of women with metastatic breast cancer

Did you know that Thursday Girls (weekly support group for women with metastatic breast cancer) runs a free partners group? Each session is led by qualified Facilitator, Sue Fisher and takes place twice a month. These sessions are an opportunity for partners to express their thoughts, feelings and share experiences with others who are in similar situations. This video on YouTube provides a great insight into how the sessions are run and the connections that are made as a result.

To learn more or express your interest in joining the group email [email protected] 


July is Head and Neck Cancer Awareness Month

Head and neck cancers occur in the mouth, throat, nose, sinuses, salivary glands, and other areas of the head and neck. Symptoms differ depending on where the cancer is occurring, however common symptoms include a sore lump that won’t heal, a persistent sore throat, enlarged lymph nodes, trouble swallowing and breathing. Some treatments can impact speech and cause mouth sores.  

To learn more about these cancers and where to access support visit our blog post.  


Study: Support factors and wellbeing for people with cancer and their carers

'Wellbeing study for people affected by cancer.' with graphic of 2 women hugging, one with a head scarf.

Researchers from Flinders University working with Cancer Council SA want to know about support factors that impact on wellbeing for people with cancer and cancer caregivers. 

If you have ever been diagnosed with cancer or a caregiver for a person with cancer, you are invited to take part in a 20-minute survey. 

The survey will ask you about background circumstances, ways you access and use health information, social support and wellbeing. 

Learn more and take the survey on this Flinders University website.


The Oncology Network  

The Oncology Network is a free online resource for health professionals. The platform provides access to exclusive commentary from key opinion leaders, clinicians, researchers and organisations. You’ll find over 80 podcast episodes spread over 6 topics including Women in global oncology. You can sign up to the oncology newsletter which is sent once a week and features news stories you won’t read anywhere else. The site also provides information on oncology meetings, jobs available and more.  

Read all the details and sign up to gain access to this information via the Oncology Network website

Head And Neck Cancer Awareness Month

This July, we are turning the spotlight on head and neck cancers, as part of an Awareness Month coinciding with World Head and Neck Cancer Day on 27 July. These are a relatively rare group of cancers, but according to Head and Neck Cancer Australia over 5300 people are diagnosed each year. These cancers and treatment often have a huge impact as swallowing, speaking and breathing can be affected.

What are head and neck cancers

Head and neck cancer refers to a group of cancers that occur in the mouth, throat, nose, sinuses, salivary glands, and other areas of the head and neck. Head and neck cancers are grouped into three main types based on where the cancer first forms in the body:

  • Mucosal squamous cell carcinomas originate in the squamous cells lining the moist areas of the mouth, nose, and throat. This is the most common type.
  • Adenocarcinomas begin in the glandular cells found in the head and neck region.
  • Cutaneous carcinomas develop from the skin of the head and neck area.

Prevention, risk factors & causes

Head and neck cancer can be caused by different factors. These include:

  • tobacco and alcohol use
  • infection with certain strains of the human papillomavirus (HPV)
  • exposure to certain chemicals and toxins (such as asbestos, wood dust and formaldehyde)
  • poor oral hygiene
  • chronic irritation of the mouth and throat, and genetic factors (such as inheriting Fanconi anaemia or Li-Fraumeni syndrome)
  • past radiation therapy to the head and neck area.

Regular dental check-ups and maintaining good oral hygiene are important for early detection and prevention. It is vital to avoid tobacco and excessive alcohol consumption. Maintaining a healthy lifestyle by remaining active and eating a balanced diet with fresh foods is also important.

Symptoms

Symptoms of head and neck cancer can vary depending on the location and stage of the cancer, but common signs include persistent sore throat, difficulty swallowing, changes in voice or hoarseness, a lump or sore that doesn’t go away, ear pain, numbness or weakness in the face, bad breath and unexplained weight loss. For a full list of symptoms for each cancer type visit the Cancer Australia website.

Detection

Head and neck cancer is often detected through a combination of methods, including physical examination, imaging tests such as CT scans and MRIs, endoscopy to examine the inside of the throat and voice box, and biopsy to collect tissue samples for examination under a microscope. Additionally, certain screening tests may be recommended for individuals at higher risk, such as those with a history of tobacco or alcohol use, or persistent symptoms suggestive of head and neck cancer.

Treatment

Treatment for head and neck cancer depends on the type, stage, and location of the cancer, but may include surgery to remove the tumor, radiation therapy to kill cancer cells, chemotherapy to destroy cancer cells or shrink tumors, targeted therapy to attack specific molecules within cancer cells, and immunotherapy to boost the body’s immune response against cancer. In some cases, a combination of these treatments may be used. Additionally, supportive care such as nutritional support and speech therapy may be incorporated into the treatment plan to help manage side effects and improve quality of life.

Support, resources, further information

Head and neck cancer Australia (HANCA). The only national charity dedicated to providing education and support to people living with Head and Neck Cancer. The HANCA website is you go-to for information, resources and support.

Counterpart – Peer support volunteers. Women who have all had their own experience of cancer, supporting other women who have cancer.  

Counterpart – cancer types. Visit the Head and Neck cancer section of this page for links to further information and resources.

 

What’s new – June 2024

What’s new in June, with links to support, information and other items of interest.


June is Bowel Cancer Awareness Month  

Bowel in red letters highlighting the main symptoms:
Blood in your poo
Obvious change in your bowel habits
Weightloss you can't explain
Extreme tiredness for no reason
Lump or swelling in your abdomen.

While the risk of bowel cancer increases with age, the disease doesn’t discriminate, affecting people of all ages. As Australia’s second deadliest cancer, it claims the lives of 103 Australians every week. However, it’s one of the most treatable types of cancer when detected early. Around 45.5% of all Australians diagnosed with bowel cancer are women of all ages. Diagnosis and treatment can affect aspects of women’s health including fertility. Learn more about bowel cancer and access support at the Bowel Cancer Australia website.

For information specific to women’s health visit the Bowel cancer in women – the facts webpage.


NAIDOC Week 7–14 July 

NAIDOC Week official artwork featuring orange flames and colourful pattern.

NAIDOC Week is celebrated every year across Australia in the first week of July. It honors and acknowledges the history, culture and accomplishments of Aboriginal and Torres Strait Islander peoples. NAIDOC Week invites all Australians to explore First Nations cultures and histories and take part in festivities celebrating the world’s oldest continuous living cultures.

See how you can support this important awareness week and for opportunities to join local events in your area visit the NAIDOC week website


Rare Cancers Awareness Day – June 26

Rare but not forgotten.

1 in 4 cancers diagnosed in Australia are rare or less common. Due to their uncommon nature, rare cancers often present unique challenges in terms of diagnosis, treatment options, and access to specialised care and research. Rare Cancers Australia (RCA) offers information about various rare cancer types, provides resources for patients and caregivers, opportunities for community engagement, and initiatives aimed at advancing research and improving treatment outcomes.

Pledge your support for Rare Cancers Awareness Day or find support groups available on the RCA website.


Head and Neck cancer study

Head and Neck Cancer Australia

Have you been diagnosed with head and neck cancer within the last 5 years? Our friends at Head and Neck Cancer Australia shared this study that you might be interested in. The University of Sydney invites you to help them explore the factors that develop and maintain fears, worries or concerns about cancer coming back or getting worse, known as fear of cancer recurrence.

To express your interest in taking part in the research email Imogen Le Couteur, Bachelor of Science (Honours) student, for more information at [email protected].


Got a story to share about women’s health?

A group of diverse women sitting in a circle and smiling while they chat.

Sharing your story can help shape system reform and improve women and girls’ experience of health care in Victoria. If you are a woman, health care worker or carer, you are welcome to share your story anonymously or more publicly by way of interviews, podcasts and more. These stories will be used to promote the Victorian Government’s Women’s Health and Wellbeing program and Inquiry into Women’s Pain.

For full details and contact information view the flyer here.  


Research Study: Chemotherapy and Sources of Side-effect Information 

The University of Sydney is researching how the information individuals receive before starting chemotherapy influences their expectations and actual experiences of chemotherapy-related side effects. Participants will be asked about the sources of information they used (such as doctors, family, or social media) and the anticipated and experienced side effects from chemotherapy.

For more information, to check eligibility and for contact details see the Participant Information statement.  


Help improve care for people with endometrial cancer

Do you or someone you know have experience with endometrial cancer? The stories, voices, and experiences shared as part of the Victorian Integrated Cancer Services (VICS) cancer consumer focus group are crucial for improving endometrial cancer services in Victoria. Participating in a brief phone call or online focus group will aid in identifying areas for improvement in these services. This will better address the needs of individuals affected by endometrial cancer and their caregivers. The findings from the focus group(s) will be presented at a VICS Optimal Care Summit in November.

To express you interest please email Helena Rodi at [email protected] or call 0412 611 713.


What happens when you’re diagnosed with a rare cancer? Podcast episode 

The Conversation Hour on ABC Radio Melbourne features stories from those who have been diagnosed with a rare cancer plus information on the latest treatments and support available. The episode aims to shed light on the unique circumstances and issues surrounding rare cancer diagnoses, offering perspectives that may resonate with patients, caregivers, and anyone interested in understanding these less common forms of cancer. 

Listen to the Radio Rare podcast episode

Time we talk about bowel cancer

June is Bowel Cancer Awareness Month. 

Bowel cancer (also called colorectal cancer) is cancer of a lower part of the bowel – the colon or the rectum. 

  • 1 in 15 Australian women will develop bowel cancer is their lifetime.
  • Bowel cancer is the second-most common cancer in Victorian women.  
  • In January 2021, there were around 6367 women living in Victoria who had been diagnosed with bowel cancer in the last 5 years. 

The risk of bowel cancer increases with age, and it can also be genetic. Two genetic conditions that can increase the risk are Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colon Cancer (HNPCC), also known as Lynch Syndrome. 

The good news is that, if it is found early, it is one of the most treatable types of cancer. With an early diagnosis there is a 5-year survival rate of around 98%. 

Screening for bowel cancer

In Australia, we are lucky to have a screening program that allows bowel cancer to be found before symptoms are seen. This means treatment is far more likely to be successful. 

If you are between 50 and 75 years old, you will have been sent a screening test in the mail. All you need to do is collect 2 tiny poo samples, in the privacy of your own bathroom. Mail them back in the post bag provided. The samples will be tested for blood.  

If blood is found, it might not be cancer. Your doctor will follow up quickly to find out what has caused the bleeding. They will make sure you get the care you need. 

Some people feel squeamish about doing the test, but it is quick, easy and clean.  Watch this video from the Australian Department of Health and Aged Care to see what you need to do. 

Prevention 

Of course, avoiding cancer is even better than catching it early. 

Cancer Council Victoria gives these tips for lowering your risk of colorectal cancer:  

  • Be active 
  • Stay at a healthy weight 
  • Don’t eat processed meat 
  • Cut down on red meat 
  • Drink less alcohol 
  • Don’t smoke 
  • Eat wholegrains, dietary fibre and dairy foods. 

You could speak with your doctor about whether aspirin might reduce your risk.

Bowel cancer treatment  

Treating and managing bowel/colorectal cancer will depend on each person’s diagnosis and situation. Here are 4 great places where you can find out more: 

  • Bowel cancer: your guide to best cancer care is a fact sheet that steps you through each stage of diagnosis, treatment and management. It explains some medical words you might hear, a list of questions you might like to ask your treating team, and links to more information.  
  • Bowel Cancer Australia explains how the cancer is diagnosed and treated. You can also read stories from people who have had bowel cancer.  
  • The Bottom Line  – podcast from Bowel Cancer Australia. A monthly chat sharing stories and information. 
  • Cancer Council Victoria has lots of information on diagnosis, treatment and management. Includes a link to download the booklet ‘Understanding bowel cancer’. 

Peer support 

Talking to someone who has had a similar condition can be reassuring. This is called peer support.  


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