Information for women with advanced/metastatic cancer

leaflets and books about advanced cancer


It can sometimes feel overwhelming searching for cancer information. There’s so much out there and it can be difficult to tell what is relevant and trustworthy.

Here are some resources that may be helpful for you, as a woman with advanced/metastatic cancer.

Can’t find what you’re looking for? Email [email protected] and we can help.

Webinars

Most Counterpart webinars are recorded, so you can watch them later. Those from our Making Connections program are just for women living with advanced/metastatic cancer.

Counterpart Navigator

The Counterpart Navigator points you to trusted information for women with breast cancer or a gynaecological cancer.

  • The 6 gynaecological cancer Navigators include information for women with advanced/metastatic cancer.
  • We are now seeking funding to expand our breast cancer Navigator to include information on advanced/metastatic cancer. Until then, scroll through the useful links below.

Our Resource Centre


Other useful links

Browse below for links to cancer information, support and clinical trials.

Information and support

All cancers

Cancer Council Victoria – Advanced cancer
Information and links to support for people living with advanced/metastatic cancer. (website)

Living with advanced cancer: a guide for people with cancer, their family and friends
Cancer Council Australia, 2019 (booklet)

CanTeen
Wide range of information and support services for young people (12-25 years) who have cancer themselves, or who have a parent with cancer. (web and support group)

CareSearch
Reliable information on palliative care, for Australian patients, families, carers and health professionals.

Breast cancer

Beyond Pink: Metastatic (Advanced) Breast Cancer Support group
Support, information and resources for anyone living with metastatic/advanced breast cancer in the Geelong/Bellarine area. (web and support group)

Breast Cancer Network Australia (BCNA) – metastatic breast cancer
BCNA provide information resources for all stages of breast cancer, including the online Hope & Hurdles for women living with metastatic breast cancer. (web)

‘Cuppa and Chat’ – support group for women with metastatic breast cancer
Available to women with a diagnosis of metastatic breast cancer on the Mornington Peninsula and surrounding areas. Meet fortnightly in a safe and nurturing environment. Find out when the next meeting is by calling Jenny Macindoe, McGrath Metastatic Breast Care Nurse, 03 9788 1754 or emailing [email protected]
(support group)

Influencing best practice in metastatic breast cancer
Cancer Australia, 2019
Prolonged survival, effective management of symptoms and the best possible quality of life are the goals of The Cancer Australia Statement – Influencing best practice in metastatic breast cancer, which lists 10 appropriate and inappropriate practices as priority areas in metastatic breast cancer treatment and care.  (Statement summary)

Signpost
Information and support for people with metastatic breast cancer in Australia. (resource card and website)

Think Pink
As part of a range of services for people affected by breast cancer, Think Pink runs Second Hope, an informal support group for women living with metastatic cancer, that meets twice a month. (support group)

Thursday Girls
The Thursday Girls is a weekly therapy and support group for women of any age, living with metatastic breast cancer. It is facilitated by two experienced social workers and meets in Box Hill. (support group)

Support for Women with Advanced Breast Cancer 
A group run by and for Australian women with advanced breast cancer. To provide a safe space for women to share, it is a closed group so applications need to be approved by group moderators. (web and support group)

Ovarian cancer

Ovarian Cancer Australia
Ovarian Cancer Australia is the peak representative organisation for ovarian cancer in Australia. They represent the needs of the ovarian cancer community, including women living with advanced/metastatic cancer, and their programs are focused on promoting awareness, advocacy, support and information.  (web and support group)


Clinical trials

People who take part in clinical trials can help contribute to medical research, while perhaps getting access to medications that aren’t yet widely available. There’s a lot to understand, so read the resources below and speak to your treating team if you are thinking of getting involved in a clinical trial.

About clinical trials

Clinical trials
Cancer Council Victoria
This web page gives a brief overview of clinical trials, why someone might want to take part and dispels some myths. Scroll down the page for links to Victorian Cancer Trials Link where you can search for a suitable trial, the booklet, ‘Understanding clinical trials and research’, and Trial Connect where individuals can connect with a person who has participated in a clinical trial.

Clinical trials for women with advanced/metastatic cancer (Counterpart webinar, March 2021)
Hear from Medical Oncologist Shirley Wong about some of the issues to take into consideration when deciding whether to participate in a trial. These include eligibility criteria, potential risks, consequences for later treatment options, different phases of trials, time and frequency of regular testing.

How clinical trials work
Australia. National Health and Medical Research Council (NHMRC) (AUS, 2015)
This is a clear explanation of a complex topic. It explains the rules and processes of a clinical trial that must be followed to make sure they are as safe as possible and the results are meaningful. Menu on the left links to ‘Who can be a part of a clinical trial?’.

Understanding clinical trials and research
Cancer Council Australia (AUS, 2018)
Information to help you make an informed decision about taking part in a trial. Explains the types of research, how to get involved, and practical issues. (booklet – PDF or hard copy)

Find a clinical trial

Australian Cancer Trials
An Australian Government website with information about the latest clinical trials in cancer care, including trials that are currently recruiting new participants.

Australian Clinical Trials
A joint initiative between the National Health and Medical Research Council and the Department of Industry, Innovation and Science providing information and resources about clinical trials.

Australian New Zealand Clinical Trials Registry
The ANZCTR is an online registry of clinical trials being undertaken in Australia, New Zealand and elsewhere.

Australia New Zealand Gynaecological Oncology Group – clinical trials
Find gynaecological cancer clinical trials currently recruiting participants.

Breast Cancer Trials
Find metastatic breast cancer clinical trials currently recruiting participants. The site also includes prevention and early breast cancer categories.