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[email protected]

Resource Centre
Level 8, 255 Bourke Street, Melbourne
Open 10am – 5pm Mon, Wed, Thurs
(closed public holidays)

What’s new – October 2024

What’s new in October, with links to support, information and other items of interest.


Study: what is your experience of caring for someone with cancer?  

woman in headscarf sits with another woman showing support and care by having her arms around her shoulders.

If you live in Australia, are over 18, and are providing, or have provided support to someone facing cancer within the last 5 years, Cancer Carer Hub and Deakin University would love to hear from you. 

This study aims to understand the experiences and support needs of all carers and support persons, with focus on those from different groups including regional or rural communities, those from a non-English speaking background and those who identify as member of the LGBTQIA+ community. Findings will be used to develop resources and services to better support carers from all communities.  

To learn more and participate visit the study website.


13 October – Metastatic Breast Cancer Awareness Day 

woman in headscarf sits in hospital bed looking out the window.

Also called stage IV (4) breast cancer, or advanced breast cancer, metastatic breast cancer is a form of cancer that has spread beyond the breast to other organs in the body, such as the bones, lungs, liver or, less commonly, brain. Because of its advanced stage, it is incurable, so the focus of treatment is on controlling the disease, quality of life and symptom management, often over the course of many years. 

If you or someone you know is affected by Metastatic Breast Cancer they may be interested to learn about this list of resources and information on how to access support. Visit our Information for women with advanced/metastatic cancer page


It’s National Carers Week 

National Carers Week branded image. Image of side profile older woman smiling with a younger woman. 'Millions of reasons to care' slogan in bold with the date and website address.

National Carers Week takes place on 13–19 October. It is a time to recognise and celebrate the invaluable contributions of Australia’s unpaid carers. More than one in ten Australians are carers therefore, they make an enormous contribution to our community. Help raise awareness this National Carers Week by inviting workmates, friends and family to an event to raise awareness of the diversity of carers and caring roles in Australia. 

Discover ways you can get involved in National Carers Week. There are a number of events happening all over the state for carers visit the events section to find an event. near you. 


Head and Neck Cancer Australia’s lymphoedema webinar 

Lymphoedema in legs and ankles.

In this recording Dr Amanda Pigott, a specialist in lymphoedema therapy, provided an in-depth overview of the condition. She highlighted that lymphoedema is often underdiagnosed, underscoring the need for increased awareness and early detection. Dr Pigott advocates for a multimodal treatment approach that incorporates professional care and self-management strategies. In this video techniques such as manual lymphatic drainage and compression therapy are covered, supported by insights from former patient Janet Curran, who shares her experiences with lymphoedema after oral cancer treatment in 2023.

Watch the webinar on Head and Neck Cancer Australia’s Youtube channel. Visit the Head and Neck cancer Australia webinar library to watch recordings on a number of topics.  


Head and Neck Cancer GP and Dentist Education module  

GP examines patients neck

The Changing Face of Head and Neck Cancer educational initiative is accredited by the Royal Australian College of GPs and the Australian College of Rural and Remote Medicine, and it is endorsed by the Australian Dental Association. This online learning activity is available to all dentists and GPs in Australia. 

Through this module, GPs will learn to perform oral and neck examinations to identify signs of head and neck cancer. Dentists will be equipped to conduct oral and extraoral examinations to screen for oral and related malignancies. 

Find out more and complete this module on the Arterial Education website.

What’s new – September 2024

What’s new in September, with links to support, information and other items of interest.


September is Gynaecological Cancer Awareness Month  

Gyneacological Cancer Awareness Month, observed in September, aims to raise awareness about cancers that affect the female reproductive system. This includes ovarian, cervical, uterine, vulvar, and vaginal cancers. This month focuses on early detection and support for women, promoting regular screenings and discussions about symptoms and risks. Each type of gynaecological cancer has distinct symptoms and risk factors. Early detection is crucial for effective treatment and improved outcomes. 

Learn more and find resources on the Australian Gynaecological Cancer Foundation website and our Counterpart Navigators


September is Blood Cancer Awareness Month

According to the Leukaemia Foundation, 1 in 12 Australians will be diagnosed with blood cancer, however, awareness is still incredibly low. Nationally, 17 people lose their lives to blood cancer every day. Many of these deaths are preventable.  Blood cancer affects the blood, bone marrow, and lymphatic system. Common types include leukemia, lymphoma, and myeloma, each impacting the body’s ability to produce healthy blood cells.

Read more about blood cancer including symptoms, treatment and where to get support via our blog post.


September is Lymphoma Awareness Month 

Lymphoma is a type of cancer that originates in the lymphatic system, a crucial part of the body’s immune system. It affects the lymph nodes, spleen, and other lymphatic tissues. There are two main types of lymphoma: Hodgkin lymphoma (HL) and non-Hodgkin lymphoma (NHL). Hodgkin lymphoma is marked by Reed-Sternberg cells. Non-Hodgkin lymphoma includes various types that do not contain these cells. Symptoms can include swollen lymph nodes, unexplained weight loss, fever, and night sweats. Treatment often involves a combination of chemotherapy, radiation therapy, and sometimes targeted therapies or immunotherapy, depending on the type and stage of the disease. 

Get all the information, resources and support on the Lymphoma Australia website.


Study: Supportive cancer care

Have you had treatment for any type of cancer? Join this study to help shape the future of supportive cancer care.

The project aims to co-design a model for supportive cancer care by a all cancer nurse service in Australia.

Anyone diagnosed with any form of cancer, past or present, and their carers are welcome to take part in this study.

Read more on the Ethicol flyer here.


Webinar – Learn about Cancer Council Victoria’s support services available to your patients.

On 30 September, VCCC Alliance is hosting a lunch and learn session for clinicians, GPs, doctors, nurses, and allied health professionals to share information about services offered by Cancer Council Victoria. Participants will learn about the 13 11 20 cancer information and support line, as well as the psychological and emotional support provided through the Nurse Counselling Service.

This webinar aims to offer comprehensive help through various resources, ensuring that those affected by cancer can find the necessary support to manage their experience effectively.

Read more and register on the VCCC website.

What’s new – August 2024

What’s new in August, with links to support, information and other items of interest.


Lymphoedema Association info day

This event taking place on 12 October from 9am to 3pm includes several presentations on topics relevant to living with lymphoedema including nutrition and lymphoedema, stretches, the lymphoedema toolbox and more. It is also an opportunity to discover new products and services through the trade exhibits and a chance to connect with others who live with this condition.

For the full program and ticket pricing visit the Lymphoedema Australia website.  


Lung Cancer Screening Program update and support

World Lung Cancer Day took place on 1 August. Lung cancer is often discovered in its advanced stages resulting in a poor survival rate. The Australian Government is currently working on a National Lung Cancer Screening Program, available to eligible populations in July 2025.

If you or someone you know has been diagnosed with lung cancer you may like to contact a Lung Foundation Australia Lung Cancer Support Nurse. This free telephone service is for people living with lung cancer, their families and carers, at any stage of diagnosis. 


Occupational lung cancer study

The Lung Foundation Australia invites you to take part in a study about occupational lung disease if you meet any of the following criteria:

  • You live with or care for someone with occupational lung cancer.
  • You are at high risk for occupational lung cancer.
  • You are a health professional working with individuals diagnosed with occupational lung cancer.

This study gathers priorities from those affected by occupational lung cancer to guide research funds and efforts to key areas.

Visit the research listing for full details.


Cancer Wellness Program  

This free online event organised by The Australian Cancer Survivorship Centre (ACSC) and Cancer Council Victoria (CCV) is open to those who have completed cancer treatment. A carer, family member or friend is also welcome to attend. This event, on Friday 13 September at 11.00am-12.30pm includes expert speakers and people with lived experience. There is a range of topics covered, including Working with your GP, Exercise and Emotional Health and Cancer Clinical Trials. 

To read more about the webinar and register visit the Zoom event listing


Don’t Forget My Pet Foundation

Don’t Forget My Pet Foundation, is a registered charity currently based in Geelong (with plans to expand in 2025), helping people over 65 and people facing social isolation, illness, disability, or mental health issues keep their companion animals. The organisation’s founder, Alysha discovered that there is no in-home care package to support the needs of people’s animals and they are such a vital part of people’s recovery and lives. Don’t Forget My Pet bridges this gap, ensuring people don’t have to choose between getting care for themselves and looking after their animals. They offer services like walking, feeding, and caring for pets when owners are unable to. 

Visit the Don’t Forget My Pet website for more information.


Rural Women Online 

The programs facilitated by Rural Women Online provide women with the opportunity to come together and learn digital skills. They recently held sessions in Greater Shepparton and have various sessions taking place in North East Victoria in September. They also have some very helpful how to guides and videos in their resources section covering multiple areas of online safety and general skills including creating your MyGov account, connecting to Zoom, setting up a website, Microsoft applications and more.  

Discover more at Rural Women Online.

What’s new – July 2024

What’s new in July, with links to support, information and other items of interest.


Free webinar: Lymphoedema & Head and Neck Cancer  

Head and Neck Cancer Australia are holding a webinar about head and neck lymphoedema. Join Guest Speaker, Dr Amanda Pigott on Thursday 1 August at 12pm to learn why head and neck lymphoedema occurs, how it can affect people and how it can be managed. If you are a patient experiencing lymphoedema and would like to join our panel to share your experience, contact Head and Neck Cancer Australia via email: [email protected].

Register for the free Head and Neck Cancer Australia webinar. 


July is Sarcoma Awareness Month 

Sarcoma is the term given to a broad group of cancers that can start in the bones and soft tissue. They can form anywhere in the body and at any age and are often misdiagnosed. The Australia and New Zealand Sarcoma Association (ANZSA) is the peak body for the sarcoma community. ANZSA seeks to improve outcomes for sarcoma patients through research, education and awareness.  

To find out more about sarcoma, to locate a sarcoma specialist or to read stories from others with sarcoma visit the ANZSA website.


Free support group for partners of women with metastatic breast cancer

Did you know that Thursday Girls (weekly support group for women with metastatic breast cancer) runs a free partners group? Each session is led by qualified Facilitator, Sue Fisher and takes place twice a month. These sessions are an opportunity for partners to express their thoughts, feelings and share experiences with others who are in similar situations. This video on YouTube provides a great insight into how the sessions are run and the connections that are made as a result.

To learn more or express your interest in joining the group email [email protected] 


July is Head and Neck Cancer Awareness Month

Head and neck cancers occur in the mouth, throat, nose, sinuses, salivary glands, and other areas of the head and neck. Symptoms differ depending on where the cancer is occurring, however common symptoms include a sore lump that won’t heal, a persistent sore throat, enlarged lymph nodes, trouble swallowing and breathing. Some treatments can impact speech and cause mouth sores.  

To learn more about these cancers and where to access support visit our blog post.  


Study: Support factors and wellbeing for people with cancer and their carers

'Wellbeing study for people affected by cancer.' with graphic of 2 women hugging, one with a head scarf.

Researchers from Flinders University working with Cancer Council SA want to know about support factors that impact on wellbeing for people with cancer and cancer caregivers. 

If you have ever been diagnosed with cancer or a caregiver for a person with cancer, you are invited to take part in a 20-minute survey. 

The survey will ask you about background circumstances, ways you access and use health information, social support and wellbeing. 

Learn more and take the survey on this Flinders University website.


The Oncology Network  

The Oncology Network is a free online resource for health professionals. The platform provides access to exclusive commentary from key opinion leaders, clinicians, researchers and organisations. You’ll find over 80 podcast episodes spread over 6 topics including Women in global oncology. You can sign up to the oncology newsletter which is sent once a week and features news stories you won’t read anywhere else. The site also provides information on oncology meetings, jobs available and more.  

Read all the details and sign up to gain access to this information via the Oncology Network website

Head And Neck Cancer Awareness Month

This July, we are turning the spotlight on head and neck cancers, as part of an Awareness Month coinciding with World Head and Neck Cancer Day on 27 July. These are a relatively rare group of cancers, but according to Head and Neck Cancer Australia over 5300 people are diagnosed each year. These cancers and treatment often have a huge impact as swallowing, speaking and breathing can be affected.

What are head and neck cancers

Head and neck cancer refers to a group of cancers that occur in the mouth, throat, nose, sinuses, salivary glands, and other areas of the head and neck. Head and neck cancers are grouped into three main types based on where the cancer first forms in the body:

  • Mucosal squamous cell carcinomas originate in the squamous cells lining the moist areas of the mouth, nose, and throat. This is the most common type.
  • Adenocarcinomas begin in the glandular cells found in the head and neck region.
  • Cutaneous carcinomas develop from the skin of the head and neck area.

Prevention, risk factors & causes

Head and neck cancer can be caused by different factors. These include:

  • tobacco and alcohol use
  • infection with certain strains of the human papillomavirus (HPV)
  • exposure to certain chemicals and toxins (such as asbestos, wood dust and formaldehyde)
  • poor oral hygiene
  • chronic irritation of the mouth and throat, and genetic factors (such as inheriting Fanconi anaemia or Li-Fraumeni syndrome)
  • past radiation therapy to the head and neck area.

Regular dental check-ups and maintaining good oral hygiene are important for early detection and prevention. It is vital to avoid tobacco and excessive alcohol consumption. Maintaining a healthy lifestyle by remaining active and eating a balanced diet with fresh foods is also important.

Symptoms

Symptoms of head and neck cancer can vary depending on the location and stage of the cancer, but common signs include persistent sore throat, difficulty swallowing, changes in voice or hoarseness, a lump or sore that doesn’t go away, ear pain, numbness or weakness in the face, bad breath and unexplained weight loss. For a full list of symptoms for each cancer type visit the Cancer Australia website.

Detection

Head and neck cancer is often detected through a combination of methods, including physical examination, imaging tests such as CT scans and MRIs, endoscopy to examine the inside of the throat and voice box, and biopsy to collect tissue samples for examination under a microscope. Additionally, certain screening tests may be recommended for individuals at higher risk, such as those with a history of tobacco or alcohol use, or persistent symptoms suggestive of head and neck cancer.

Treatment

Treatment for head and neck cancer depends on the type, stage, and location of the cancer, but may include surgery to remove the tumor, radiation therapy to kill cancer cells, chemotherapy to destroy cancer cells or shrink tumors, targeted therapy to attack specific molecules within cancer cells, and immunotherapy to boost the body’s immune response against cancer. In some cases, a combination of these treatments may be used. Additionally, supportive care such as nutritional support and speech therapy may be incorporated into the treatment plan to help manage side effects and improve quality of life.

Support, resources, further information

Head and neck cancer Australia (HANCA). The only national charity dedicated to providing education and support to people living with Head and Neck Cancer. The HANCA website is you go-to for information, resources and support.

Counterpart – Peer support volunteers. Women who have all had their own experience of cancer, supporting other women who have cancer.  

Counterpart – cancer types. Visit the Head and Neck cancer section of this page for links to further information and resources.

 

What’s new – June 2024

What’s new in June, with links to support, information and other items of interest.


June is Bowel Cancer Awareness Month  

Bowel in red letters highlighting the main symptoms:
Blood in your poo
Obvious change in your bowel habits
Weightloss you can't explain
Extreme tiredness for no reason
Lump or swelling in your abdomen.

While the risk of bowel cancer increases with age, the disease doesn’t discriminate, affecting people of all ages. As Australia’s second deadliest cancer, it claims the lives of 103 Australians every week. However, it’s one of the most treatable types of cancer when detected early. Around 45.5% of all Australians diagnosed with bowel cancer are women of all ages. Diagnosis and treatment can affect aspects of women’s health including fertility. Learn more about bowel cancer and access support at the Bowel Cancer Australia website.

For information specific to women’s health visit the Bowel cancer in women – the facts webpage.


NAIDOC Week 7–14 July 

NAIDOC Week official artwork featuring orange flames and colourful pattern.

NAIDOC Week is celebrated every year across Australia in the first week of July. It honors and acknowledges the history, culture and accomplishments of Aboriginal and Torres Strait Islander peoples. NAIDOC Week invites all Australians to explore First Nations cultures and histories and take part in festivities celebrating the world’s oldest continuous living cultures.

See how you can support this important awareness week and for opportunities to join local events in your area visit the NAIDOC week website


Rare Cancers Awareness Day – June 26

Rare but not forgotten.

1 in 4 cancers diagnosed in Australia are rare or less common. Due to their uncommon nature, rare cancers often present unique challenges in terms of diagnosis, treatment options, and access to specialised care and research. Rare Cancers Australia (RCA) offers information about various rare cancer types, provides resources for patients and caregivers, opportunities for community engagement, and initiatives aimed at advancing research and improving treatment outcomes.

Pledge your support for Rare Cancers Awareness Day or find support groups available on the RCA website.


Head and Neck cancer study

Head and Neck Cancer Australia

Have you been diagnosed with head and neck cancer within the last 5 years? Our friends at Head and Neck Cancer Australia shared this study that you might be interested in. The University of Sydney invites you to help them explore the factors that develop and maintain fears, worries or concerns about cancer coming back or getting worse, known as fear of cancer recurrence.

To express your interest in taking part in the research email Imogen Le Couteur, Bachelor of Science (Honours) student, for more information at [email protected].


Got a story to share about women’s health?

A group of diverse women sitting in a circle and smiling while they chat.

Sharing your story can help shape system reform and improve women and girls’ experience of health care in Victoria. If you are a woman, health care worker or carer, you are welcome to share your story anonymously or more publicly by way of interviews, podcasts and more. These stories will be used to promote the Victorian Government’s Women’s Health and Wellbeing program and Inquiry into Women’s Pain.

For full details and contact information view the flyer here.  


Research Study: Chemotherapy and Sources of Side-effect Information 

The University of Sydney is researching how the information individuals receive before starting chemotherapy influences their expectations and actual experiences of chemotherapy-related side effects. Participants will be asked about the sources of information they used (such as doctors, family, or social media) and the anticipated and experienced side effects from chemotherapy.

For more information, to check eligibility and for contact details see the Participant Information statement.  


Help improve care for people with endometrial cancer

Do you or someone you know have experience with endometrial cancer? The stories, voices, and experiences shared as part of the Victorian Integrated Cancer Services (VICS) cancer consumer focus group are crucial for improving endometrial cancer services in Victoria. Participating in a brief phone call or online focus group will aid in identifying areas for improvement in these services. This will better address the needs of individuals affected by endometrial cancer and their caregivers. The findings from the focus group(s) will be presented at a VICS Optimal Care Summit in November.

To express you interest please email Helena Rodi at [email protected] or call 0412 611 713.


What happens when you’re diagnosed with a rare cancer? Podcast episode 

The Conversation Hour on ABC Radio Melbourne features stories from those who have been diagnosed with a rare cancer plus information on the latest treatments and support available. The episode aims to shed light on the unique circumstances and issues surrounding rare cancer diagnoses, offering perspectives that may resonate with patients, caregivers, and anyone interested in understanding these less common forms of cancer. 

Listen to the Radio Rare podcast episode

Time we talk about bowel cancer

June is Bowel Cancer Awareness Month. 

Bowel cancer (also called colorectal cancer) is cancer of a lower part of the bowel – the colon or the rectum. 

  • 1 in 15 Australian women will develop bowel cancer is their lifetime.
  • Bowel cancer is the second-most common cancer in Victorian women.  
  • In January 2021, there were around 6367 women living in Victoria who had been diagnosed with bowel cancer in the last 5 years. 

The risk of bowel cancer increases with age, and it can also be genetic. Two genetic conditions that can increase the risk are Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colon Cancer (HNPCC), also known as Lynch Syndrome. 

The good news is that, if it is found early, it is one of the most treatable types of cancer. With an early diagnosis there is a 5-year survival rate of around 98%. 

Screening for bowel cancer

In Australia, we are lucky to have a screening program that allows bowel cancer to be found before symptoms are seen. This means treatment is far more likely to be successful. 

If you are between 50 and 75 years old, you will have been sent a screening test in the mail. All you need to do is collect 2 tiny poo samples, in the privacy of your own bathroom. Mail them back in the post bag provided. The samples will be tested for blood.  

If blood is found, it might not be cancer. Your doctor will follow up quickly to find out what has caused the bleeding. They will make sure you get the care you need. 

Some people feel squeamish about doing the test, but it is quick, easy and clean.  Watch this video from the Australian Department of Health and Aged Care to see what you need to do. 

Prevention 

Of course, avoiding cancer is even better than catching it early. 

Cancer Council Victoria gives these tips for lowering your risk of colorectal cancer:  

  • Be active 
  • Stay at a healthy weight 
  • Don’t eat processed meat 
  • Cut down on red meat 
  • Drink less alcohol 
  • Don’t smoke 
  • Eat wholegrains, dietary fibre and dairy foods. 

You could speak with your doctor about whether aspirin might reduce your risk.

Bowel cancer treatment  

Treating and managing bowel/colorectal cancer will depend on each person’s diagnosis and situation. Here are 4 great places where you can find out more: 

  • Bowel cancer: your guide to best cancer care is a fact sheet that steps you through each stage of diagnosis, treatment and management. It explains some medical words you might hear, a list of questions you might like to ask your treating team, and links to more information.  
  • Bowel Cancer Australia explains how the cancer is diagnosed and treated. You can also read stories from people who have had bowel cancer.  
  • The Bottom Line  – podcast from Bowel Cancer Australia. A monthly chat sharing stories and information. 
  • Cancer Council Victoria has lots of information on diagnosis, treatment and management. Includes a link to download the booklet ‘Understanding bowel cancer’. 

Peer support 

Talking to someone who has had a similar condition can be reassuring. This is called peer support.  


Volunteers are the heart of Counterpart

What better time to reflect on the importance of our volunteers than National Volunteer Week? We are lucky enough to benefit from volunteer assistance in a range of ways: volunteers provide peer support, help at our events and activities, participate in our Counterpart Advisory Group, review resources and information, and so much more. Thank you to each and every one of you.

Animated text saying 'Thank you' scrolls in, with bright pastel colours in the background and Counterpart's logo in the top right.

Peer Support Volunteers

Our service is founded on the belief that women who have experienced cancer are uniquely placed to help other women going through cancer. Our trained Peer Support Volunteers are available to talk to women diagnosed with any type of cancer who are living or being treated in Victoria.

In 2024, we have been pleased to welcome 14 new trainee Peer Support Volunteers at Counterpart. These women are the first intake to be taking part in our new online training program that consists of self-guided online modules, an in-person orientation session, an online workshop and practical training with more experienced Peer Support Volunteers.

A woman using Counterpart's online volunteer training module on her laptop. On her screen is an orange block with text that says Counterpart Peer Support Volunteer Training part 1.

Online training and extending to regional Victoria

The new training program has taken countless hours over the last 12-months: time spent planning, developing content, uploading and reviewing. We are pleased to see that the feedback we have been given so far has been positive, and the women doing the training are finding the content engaging and the system east to use.

Using technology to assist in mentoring has also been successful. Trainee volunteers can do their on-the-job training in person at our Resource Centre or over Teams, so those who can’t make it into Melbourne can still listen to experienced volunteers provide peer support and debrief afterwards.

This new hybrid training format has meant we could include 4 volunteers from rural and regional Victoria for the first time. We are looking forward to expanding this number in future, as Counterpart develops and creates new opportunities for volunteers.

About the Peer Support Volunteer role

Counterpart Peer Support Volunteers can:

  • listen without judgement to you talk about what is on your mind
  • draw on their own experiences and their training to give you support or encouragement
  • provide emotional support and practical advice (without ever providing medical, legal or financial advice)
  • help you find reliable, evidence-based information or suggestions on where you can go for specialised assistance.

How do I become a Peer Support Volunteer

If you have experienced cancer and want to use your experience to help others, you might consider becoming a Peer Support Volunteer. You can read about the application process and training provided on our Become a Peer Support Volunteer page.

It isn’t a role for everyone. As well as having experienced a cancer diagnosis, you also need to be in the right place within yourself. This is why we generally suggest you wait at least a year between your diagnosis and becoming a Peer Support Volunteer. We are moving towards multiple intakes each year. To find out about the next one, please fill in an expression of interest form, and we will be in touch when we have the next round of applications opens.

Four women of varied ages sitting in Counterpart's resource centre.  The mood is cheerful and casual. Two women hold tea cups and laugh, while the other two have a slightly more earnest conversation.
Counterpart volunteers at a morning tea celebrating National Volunteer Week, May 2023.

Where can I talk to a Peer Support Volunteer?

Our volunteers can talk on the phone, or if you want to talk face-to-face, you can come into our Resource Centre in Melbourne’s CBD (although it is always worth calling first, as our volunteers often work from home).

Some volunteers also take part in our Bridge of Support program, going to the Royal Melbourne, Royal Women’s and Sunshine hospitals, and soon the Peter MacCallum Cancer Centre, to provide peer support to women undergoing treatment or attending appointments in hospital.

Fill out our online peer support request form and we can get in touch with you.

 

What’s new – May 2024

What’s new in May, with links to support, information and other items of interest.


Survey: How many women experience long-term side-effects after cancer and cancer treatment?

'Cancer treatment survey' text in white with a navy overlay on an image of a woman sitting on the couch

If you are a woman who has had cancer, you are invited to take part in a survey about your experiences. The survey is part of a study that aims to understand how women experience long-term side-effects after cancer and cancer treatment. The study also hopes to understand how women’s everyday life is impacted by these side effects. They survey is online and takes about 20-40 mins to complete. It closes 31 May.

For full details and to participate visit the UniMelb survey website.


Melanoma Patients Australia and Melanoma Institute Australia (MIA) webinar series

'webinar series' text over an image of a woman sitting in a wheelchair looking at a laptop.

These free webinars will provide the rare opportunity to hear from MIA experts and a Melanoma Patients Australia community member about different topics of interest each week. They will be held every Tuesday evening for three weeks in June from 7–8pm.

To read more and register visit the MIA website.


Bladder/kidney cancer study: share your story

Asian woman sitting at a laptop

The purpose of the online study is to let those diagnosed with bladder/kidney cancer share their stories including their unmet needs, what is the concern during the treatment, and opinion towards a new treatment to see how they can better supported in the future.

For full information and to take part in this study view the flyer here.


Living with neuro endocrine tumours (NET) program intakes

Living with NETs, register now graphic

This online education program for NET patients and carers provides vital information to help them gain a deeper understanding of NETs, their treatment options and other topics that will support their day-to-day lives. It also offers encourages sharing and discussion in a safe space and build confidence to aid with self-advocating. Spanning over four weeks (session are two hours per week) this program has intakes in July and October.

To learn more and enrol visit the NET website


Managing the financial realities of blood cancer webinar

'Managing finances webinar' white text on dark green overlay with image of woman holding calculator and bills.

Personal and financial security can change after a cancer diagnosis. This webinar, hosted by the Leukaemia Foundation will be live online on Wednesday 29 May at 11am–12.30pm. This session will focus on the unique financial issues related to a blood cancer diagnosis, alternative income streams, the role of financial counselling and information on making a will.  

For full details visit the Leukaemia Foundation website.


Rare Cancers Australia support guide

Image of rare cancers guide booklets on light blue background

The Rare Cancer Support Guide aims to provide patients and their loved ones with thorough guidance to assist them in navigating their individual cancer experience. The guide is split into four separate booklets that can either be downloaded or ordered via their site. Even if your type of cancer is not rare, The support guide is full of useful information.

Find out more and download the guide on the Rare Cancers Australia website.

What’s new –April 2024

What’s new in April, with links to support, information and other items of interest.


April is Oesophageal Cancer Awareness Month 

Pancare Foundation Oesophageal Cancer Awareness Month graphic. Features Pancare logo.

Pancare Foundation provides in-depth information on various aspects of oesophageal cancer from symptoms, diagnosis and beyond. They also offer supportive resources and practical guidance to help patients and their loved ones navigate the challenges associated with this type of cancer.

Visit the Pancare Foundation website or download their Oesophageal cancer patient handbook.


Inquiry into Women’s Pain

text: Have your say, Inquiry into women's pain with Victoria government logo and words 'department of health'.

The Inquiry into Women’s Pain provides a platform for individuals to share their experiences, assess barriers to care, describe the impact of current service delivery, explore opportunities for improvement, and consider models of care and workforce adjustments. Additionally, it aims to translate research to address gender disparities and improve equity in pain management outcomes.

To read more, make a submission or complete a survey visit the Department of Health website.


World Cancer Rehab Week: 15–21 April

Text reads '15-21 April, world cancer rehab week.' with graphic an arm holding a dumbell.

Cancer rehabilitation involves a range of therapies that aid in recovery and assist with regaining optimal physical, emotional, and functional wellbeing. It can include exercises, physical therapy, occupational therapy, speech therapy, nutritional support, pain management, counselling, and other supportive services. The goal of cancer rehabilitation is to improve quality of life, alleviate symptoms, and promote overall recovery and wellbeing throughout an individuals cancer experience.

To learn more about cancer rehabilitation visit the Cancer Council Website.


Ovarian Cancer Australia (OCA) launches Psychosocial Research Centre

The Ovarian Cancer Psychosocial Research Centre is dedicated to advancing research on the psychological and social aspects of ovarian cancer, and translating findings into practical strategies. Through collaboration with experts, including its Advisory Committee composed of academics and health professionals, the centre prioritises research efforts, establishes new projects, and ensures effective support for those impacted by ovarian cancer. The goal of the centre is to improve the quality of life for patients by addressing their diverse needs and bridging the gap between research and real-world support.

Read more about the centre on the OCA website.


Lecture: Hope and Resilience in Women after Cancer through Music and Arts Therapy

Music and Imagery Association Australia presents – Creating Hope and Resilience in Women after Cancer through Music and Arts Therapy. Presented by Dr Margareta Wärja, this lecture focuses on the results of a clinical study about the impacts of music therapy after gynecological cancer treatment. This event is taking place on 1 May at the Dax Centre & online.

Visit the Eventbrite listing for full details.


New app helps GPs support patients with palliative & end of life care

The CareSearch GP app assists GPs in delivering quality palliative care by bringing together guidance and evidence-based information on crucial care topics such as advance care planning, recognising deterioration, engaging in palliative care case conferences, caring for dying patients, and assisting families through bereavement stages.

Visit the CareSearch website for details on downloading the app.

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