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[email protected]

Resource Centre
Level 8, 255 Bourke Street, Melbourne
Open 10am – 5pm Mon, Wed, Thurs
(closed public holidays)

What’s new – October 2022


New website for Aboriginal and Torres Strait Islander people with cancer

Our Mob and Cancer is Australia’s first comprehensive cancer website developed by and for Indigenous Australians. Launched last week, it aims to improve health outcomes and care across the country.

The website includes information about cancer and where to get help and support. It also covers culturally sensitive topics such as sorry business.

A dedicated section provides guidance to healthcare professionals about culturally appropriate cancer care for First Nations people and the particular importance of this when supporting Indigenous cancer patients.

Visit ourmobandcancer.gov.au


Free information and support resources for women with metastatic breast cancer

Flinders University is offering free resources to women living with advanced/metastatic breast cancer (interactive internet-based program or BCNA online resources). These resources are offered as part of the Finding My Way – Advanced research study, with support from Cancer Australia and Breast Cancer Network Australia (BCNA).

If you have been diagnosed with metastatic breast cancer, you can sign up to the study online.

Once signed up, you access the information and consent form online and complete a questionnaire. Then you will be randomised to receive either the Finding My Way – Advanced program or BCNA’s ‘My Journey’ resource. You can use the resource you are assigned as much or as little as you find helpful. You will then be emailed links to complete follow-up questionaries at 6 weeks, 3 months and 6 months later.

Sign up to the study at www.findingmywayadvanced.org.au.

For more information, please contact Finding My Way – Advanced Coordinator Dr Emma Kemp by email at [email protected] or by calling 08 7421 9954.


Are you caring for someone with advanced cancer?

Caring for a person with cancer can have a substantial impact on an individual’s wellbeing. Especially when the person you are supporting is living with an advanced cancer diagnosis.

The iACT study is looking for participants. This study is exploring how carers can be best supported to maintain their own wellbeing, coupled with timely information to assist them in their caring role.

If you participate, you will be given self-help resources, support and information. You will asked to complete a survey when you begin, and then a follow-up survey 3 months later. You can choose between completing the survey online, in hard copy (with reply-paid return), or over the phone with a research assistant at a time that is convenient to you.

After finishing each survey (2 in total), you will receive a $30 gift card as reimbursement afterwards for any costs associated with participation.

Visit iactforcarers.com for more information or to sign up. 


Help make volunteering more inclusive by joining an advisory group

Volunteering Victoria are setting up Advisory Groups to help them make volunteering and their resources inclusive for:

  • people with disability
  • newly arrived migrants
  • First Nations Peoples of Victoria. 

If you want to be a voice for your community, then they want to hear from you!

Register your interest in joining one of these Advisory Groups via the Volunteering Victoria website. If you are interested, you will need to Complete an Expression of Interest form by 10am, Monday 7 November.

What’s new – September 2022

Links to support, information and other items from the cancer sector.

September is Blood Cancer Month

Leukaemia Foundation logo

As part of this awareness month, the Leukaemia Foundation are letting everyone affected by blood cancers know about their helpline. If you or one of your loved ones are affected by a blood cancer (including leukaemia, lymphoma, myeloma and other blood disorders), you can call to connect with a blood cancer support professional. 

Visit the Leukaemia Foundation


Cancer Wellness Program webinar

Australian Cancer Survivorship Centre

Friday, 7 October 2022, 11.00am–12.30pm

This free webinar is for anyone who has had cancer, their carers, partners and family members. It is organised by the Australian Cancer Survivorship Centre, based at Peter MacCallum Cancer Centre, in partnership with Cancer Council Victoria.

Cancer specialists and a consumer advocate will present information, practical tips and strategies for living well with and beyond cancer.

Read more or register for the Cancer Wellness Program webinar.


Study seeking people who have finished bowel cancer treatment

MindOnLine 9 week program. Hands over hand rail.

Researchers from Deakin University are looking for people living with stage 1–3 bowel cancer to join this study into the impact of an online mindfulness program (MindOnLine). Participants will be asked to complete three surveys over an eight month period.

View the flier for more information including eligibility criteria. 


Fertility After Cancer campaign

Fertility after cancer

Cancer and cancer treatment can affect fertility, so it is essential that everyone diagnosed knows their options and can make informed and timely decisions. The Western and Central Melbourne Integrated Cancer Service has launched a four-week Fertility After Cancer campaign to raise awareness about fertility preservation options available to patients following a cancer diagnosis.

Visit the Fertility after cancer website for more information.


City of Melbourne tech help sessions

City of Melbourne logo

City of Melbourne’s Connect Cafes provide tech help sessions with a trained and skilled Tech Helper. Learn more about how to use your mobile, laptop or tablet to connect better with family and friends and research or discover new interests. 

Spring Connect Cafe at the Kensington Neighbourhood Centre: 9am to 12pm on Fridays from Friday 2 September to Friday 28 October (excluding 23 September).

Summer Connect Cafe at the Jean McKendry Neighbourhood Centre: Starts Tuesday 7 February 2023.

Bookings essential. For full details visit the Connect Cafe webpage on the City of Melbourne website.


The Health Techonology Assessment Consumer Consultations

Conversations for change logo

The Health Technology Assessment (HTA) Consumer Consultative Committee is hosting its second symposium for health consumers and health consumer and patient organisations with an interest in HTA. Over two half-days, the symposium, titled Conversations for Change, will explore the evolving role of consumers in the HTA process.  This is a free virtual event that will be held on 18 and 19 October. Registrations essential.

Visit the Conversations for change website.


Sexuality counselling for women with ovarian cancer

Ovarian Cancer Australia logo

Ovarian Cancer Australia (OCA) has new sexual counselling pilot program providing women with dedicated counselling sessions to address changes to body image, intimacy, sexuality, and relationships that occur following a diagnosis and treatment for ovarian cancer. Dr Amanda Hordern, a leading clinician and expert in sexual health and cancer, is delivering these one-on-one counselling sessions.  

OCA also launched a new booklet on Sexuality, Body Image, Relationships and Ovarian Cancer for people who have been treated for ovarian cancer, their families, partners and friends. 

Visit the OCA sexuality counselling pilot program website.

What’s new – August 2022

Links to support, information and other items from the cancer sector.


CarerHelp – information and resources for carers

CarerHelp logo

CarerHelp is an online resource that provides information and resources to support Australians who are caring for a partner, relative or friend as they near the end of life.

The website includes videos of health professionals and family carers sharing experiences of end of life care, links to trustworthy resources, and useful fact sheets and templates.

Visit CarerHelp


New blood cancer Optimal Care Pathways

Optimal Care Pathways: setting national standards for blood cancer treatment and care

On 9 August, 6 new Optimal Care Pathways (OCPs) for blood cancer were launched.

These OCPs will set national standards of care and treatment for blood cancer patients across Australia, no matter where they live, or access treatment. The OCPs have been produced for health professionals, but information for people affected by those cancers is also available through the Guides to Best Cancer Care.

Visit optimalcarepathways.com.au (for health professionals)

Visit Guides to Best Cancer Care (for people with cancer)


RMH Breast Service seeking consumer involvement

The Royal Melbourne Hospital logo

The Royal Melbourne Hospital (RMH) Breast Service are looking for women who have experienced breast cancer to help them develop an online tool to support their patients. You do not have to have had treatment at RMH to help out.

This role would involve:

  • a one-off 2 hour time commitment to go through new virtual technology to support patients (this will be an online sessions, so internet access is required)
  • an opportunity to review new functionality and provide feedback.

If you are interested, please contact:

Dani Stramandinoli (she/her), Virtual Care Project Manager, RHM at [email protected]


Look Good Feel Better virtual workshops

Information sheet, make-up tools, wig and scarf next to an open laptop on a desk.

Look Good Feel Better have been supporting people who are having cancer treatment for over 30 years. They are now offering virtual workshops which are live and interactive and offer cancer patients the opportunity to engage with those in a similar situation without the need to leave the comfort of home.

These workshops are free and they cover a wide range of topics including exercise, nutrition, healthy cooking, relaxation, as well as skin care and make-up, and wigs and headwear.

Visit Look Good Better virtual workshops


New bladder cancer guidebook

Bladder Cancer Australia have a Bladder Cancer Patient Guidebook that can be downloaded for free or posted to you for a small donation. The guidebook is endorsed by the Urological Society of Australia and New Zealand USANZ and the Australia & New Zealand Urological Nurses Society ANZUNS.

Get a copy of the Bladder Cancer Patient Guidebook


Spring into This Girl Can Week

This Girl Can and VicHealth logo on a purple background with two cartoon women waving their arms.

This Girl Can Week is back in 2022, running (see what we did there? 😉) from 12–18 September. The week is about celebrating and supporting Victorian women to embrace physical activity in a way that suits us. Whether it’s a little or a lot, what matters is getting some movement into our day.

For a list of activities, information and inspiration, visit the This Girl Can website.

What’s new – July 2022

Links to support, information and other items from the cancer sector.


Australian Cancer Plan engagement hub

Cancer Australia logo with the Australian Government emblem

Cancer Australia has launched the new Australian Cancer Plan engagement hub – an easy-to-use interactive website to stay up to date with the development of the first Australian Cancer Plan. 

Visit the Australian Cancer Plan engagement hub or you can register to receive updates.


Study into CALD patient safety and engagement in cancer settings

Macquarie University logo

Are you from a culturally and linguistically diverse background and have had cancer treatment at Western Health or Austin Health?

Researchers from Macquarie University are seeking participants to take part in a 30-45 minute interview (face-to-face, online or via telephone).

This research aims to improve the engagement and safety of patients and families from different backgrounds accessing cancer services in New South Wales and Victoria. 

Download a flyer with information about how to take part in this study.


New National Pancreatic Cancer Roadmap

Yellow diamond shaped road sign with a black arrow.

The National Pancreatic Cancer Roadmap has been developed by Cancer Australia to improve outcomes and survival for Australians affected by pancreatic cancer. The Roadmap identifies 33 key priority areas and 60 strategies for collective action over the next five years to 2027.

Visit pancreaticroadmap.canceraustralia.gov.au


Breast cancer in young women Q&A event

Breast Cancer Trials logo

Join a free online Q&A event, moderated by author and journalist Annabel Crabb, on Wednesday 27 July from 5:30pm–7.00pm. Leading researchers and breast cancer experts will discuss breast cancer in young women. This event will be broadcast live from Federation Square as part of the Breast Cancer Trials 2022 Annual Scientific Meeting.

Register your interest or leave a question for the expert panel.


Survey: National Cervical Cancer Elimination Strategy

Eliminate cervical cancer in Australia by 2035!

The Australian Centre for the Prevention of Cervical Cancer have produced a Consultation Paper that summarises Australia’s progress towards cervical cancer elimination and asks for Australians’ ideas about how we can succeed in reaching global targets across the three elimination pillars: 

  1. HPV vaccination 
  2. Cervical screening and treatment of precancers 
  3. Cervical cancer treatment.  

They are inviting you help shape a National Cervical Elimination Strategy by completing an online survey. The survey is open until 29 July 2022 and takes about 5 minutes to complete. If you have lived experience with cervical cancer and are willing to complete an extended survey, it will take an additional 10 minutes.  

Access the survey, including the Easy Read accessible version.


Phone in a woman's hand showing the Counterpart Navigator homepage

If you have early breast cancer or any stage of gynaecological cancer, the Counterpart Navigator can help you find information. The Navigators link to a range of resources that health professionals and women with cancer have reviewed and found to be helpful and reliable. Topics also include questions to consider or ask your treating team.

Visit the Counterpart Navigator website, or download the free app.


Counterpart expands to all women with cancer

Every year 16,000 women in Victoria are told they have cancer. Many of these women will now have increased access to support, with Women’s Health Victoria’s cancer support service opening its doors to women with all cancer types.

‘Our vision is for every woman to live well – healthy, empowered, equal’, says Women’s Health Victoria CEO Dianne Hill. ‘Counterpart has been providing a quality peer support service to women with breast or a gynaecological cancer for almost 20 years. We are thrilled to be able to offer that same support to the 10,000 women diagnosed with other types of cancer each year’.

Counterpart supports women from diagnosis onwards, helping women find information and services, and providing peer support. Trained volunteers give other women with cancer the space to adjust to their diagnosis and provide the support and understanding that can only come from a lived experience. This support can make a huge difference to a woman’s experience of cancer.

Counterpart Peer Support Volunteer Margaret agrees. ‘I am passionate in supporting the extension of our service. As breast cancer is not my only cancer diagnosis, I can see the value of the support that Counterpart can provide to women with all types of cancer’, she says.

I think it is an issue of equity too, as it is very hard to deny a woman with another cancer type the wonderful service received by women with a breast or gynaecological cancer.

Margaret, Peer Support Volunteer, Counterpart

Manager Fiona McRae says that the Counterpart team has been working with other organisations and services that support different tumour streams, as well as women living with other cancer diagnoses to prepare for the expansion. ‘It is very important that we aren’t duplicating other services,’ she says. ‘We have heard from many women diagnosed with different cancers, that they really want to be able to talk with someone else who understands what it is like. We want to be able to provide that support, and also ensure that women know what other services are available that may help them in what can be really difficult times’.

Find out more about Counterpart’s peer support program and other services at counterpart.org.au.

 

What’s new – June 2022

Links to support, information and other items from the cancer sector.


Cancer, Covid-19 & you survey

This survey has been extended to 22 June 2022 so more people affected by cancer can have their say.

Cancer is hard. Covid-19 made it even harder.  The pandemic forced many changes in healthcare that affected cancer care – some changes were for the better, others weren’t.

Cancer Council Victoria, in partnership with The Daffodil Centre, is undertaking research to understand the impact of Covid-19 on people affected by cancer. This includes the emotional impact, treatment changes, the cost of cancer and hospital visitor restrictions.

If you were diagnosed with cancer, or cared for someone with cancer, during the Covid-19 pandemic, Cancer Council Victoria want to hear from you.

Complete the Cancer, Covid-19 and you survey.


Encore – exercise programs for women with breast cancer

YWCA Encore logo

Encore is a free award-winning exercise program run by YWCA Australia for women who have experienced breast cancer or preventative mastectomy. It is an 8-week program of land and pool-based exercises, healthy lifestyle information, and support. Please note that attendance is by enrolment only and medical approval is required.

Upcoming programs in Victoria:

Ballarat exercise program: 21 July 2022 to 8 September 2022, every Thursday from 1pm–3pm. Download a flyer for the Ballarat program.

Bayside exercise program: 22 July 2022 to 9 September 2022, every Friday from 6:30pm–8:30pm.

Mildura exercise program: 19 July 2022 to 6 September 2022, every Tuesday from 11am–1pm.

For more information or to register, visit www.ywcaencore.org.au/programs  


Survey about clinical trial matching websites

Clinical trials are important to improving cancer care, but many people affected by cancer don’t find out about appropriate trials.  

Researchers from the VCCC Alliance want to find out about your thoughts or experience of using websites that match patients to clinical trials. They will use this feedback to inform an important awareness project as part of their Clinical Trial Innovations program. 
Take the clinical trials matching survey


What’s new – May 2022

Links to support, information and other items from the cancer sector.


Cancer, Covid-19 & you survey

Cancer Council Victoria logo. Blue text and a yellow daffodil.

Cancer is hard. Covid-19 made it even harder.  The pandemic forced many changes in healthcare that affected cancer care – some changes were for the better, others weren’t.

Cancer Council Victoria, in partnership with The Daffodil Centre, is undertaking research to understand the impact of Covid-19 on people affected by cancer. This includes the emotional impact, treatment changes, the cost of cancer and hospital visitor restrictions.

If you were diagnosed with cancer, or cared for someone with cancer, during the Covid-19 pandemic, Cancer Council Victoria want to hear from you. Survey closes 9 June 2022.

Complete the Cancer, Covid-19 and you survey.


Translated information about health and wellbeing

Health Translations - Translated information about health and wellbeing. White writing on a dark pink background, with a logo of a stylised map of Victoria made up of white and grey geometric shapes.

Health Translations is a free online library of high-quality translated Australian health and wellbeing information. With translated resources in more than 100 languages, Health Translations offers the most reliable and complete collection of multilingual health and wellbeing resources for those working with culturally and linguistically diverse communities.

Made for Australian health practitioners and people who work with culturally and linguistically diverse communities, the site provides quick access to a wealth of reliable resources.

The new look of the Health Translations website brings you a better online experience, making it easier to find multilingual resources.

Visit the Health Translations website


Updated information about lymphoedema

Australasian Lymphology Association logo

The Research Committee of the Australasian Lymphology Association (ALA) has reviewed and updated the ‘What is lymphoedema’ page of their website. It provides a comprehensive, up-to-date overview of lymphoedema, including causes, risk factors and diagnosis. 

Read about lymphoedema on the ALA website.


Research study: identity and body image following gynaecological cancer

A researcher from the University of South Australia is looking to speak to women who identify as lesbian, bisexual, gay or queer and have experienced a gynaecological cancer. You would participate in a study exploring the way gynaecological cancers can change or impact the way women view, see or think about themselves following treatment.

If you are interested in participating, find out more online or download a flyer about the project.


On the down low – new podcast about ovarian cancer

On the down low: a podcast speaking up about ovarian cancer. White text on a teal background, with an illustration of headphones.

‘On the down low’ is a new is a six-part series featuring the stories of nine women living with ovarian cancer and caregivers. They share their stories and make a powerful call for advocacy, awareness and change.

It covers ovarian cancer experiences such as symptoms and diagnosis, treatment and side effects, relationships and intimacy, issues specific to regional and younger women, research, recurrence, hope and advocacy. 

‘On the down low’ is produced by the Australia New Zealand Gynaecological Oncology Group (ANZGOG) – the peak national gynaecological cancer research organisation for Australia and New Zealand.

Listen to ‘On the down low’ on ANZGOG’s website. Content warning: you may find this podcast confronting.


Dragon boating after breast cancer with DAM Busters

DAM BUSTERS AUSTRALIA logo with a drawing of women wearing pink in a purple dragon boat superimposed over a yellow outline of a map of Australia.

Dragon boating is something anyone can do and enjoy! No experience needed.

Women who have experienced breast cancer are invited to join the DAM Busters Breast Cancer Survivor Dragon Boat Club. Paddling the waters of Docklands, you can exercise, get to know others and, most importantly, have fun! 

Download the DAM Busters brochure for all the information you need to get involved, or visit the new DAM Buster’s website


Research study: treating bladder leakage after gynaecological cancer

Traditional paper dolls, with one doll crossing its legs in urgency.

If you have had treatment for a gynaecological cancer and have experienced bladder leakage you may be interested in participating in a study being undertaken by researchers from Melbourne University and Monash Health.

Bladder leakage or urinary incontinence is common in women, especially women who have had treatment for gynaecological cancer. It can affect daily activities, personal relationships and a person’s sense of well-being. This study aims to help us better understand treatments that may help women experiencing bladder leakage after having treatment for gynaecological cancer.

Download a flyer to find out about this physiotherapy research study.


Supporting all women with cancer from July

For almost 20 years, we have provided connection, support and information to women with breast or a gynaecological cancer. We are looking forward to extending our services to other women with cancer. In July, Counterpart will be welcoming Victorian women with any type of cancer to talk with a Peer Support Volunteer or attend an event.

Get support

From 1 July, Peer Support Volunteers will be available to support you, listen and share. Women who have experienced the physical, emotional and social impacts of a cancer diagnosis and treatment can provide support that others cannot. Our current volunteers all have their own experience of cancer and are trained to support other women affected by cancer. Request a call from a Counterpart Peer Support Volunteer.

Come to an event

Our May to August program includes webinars and online workshops on a range of different topics. Some are information-based and others include activities to help you look after your own wellbeing. Our What’s On program is open to all women with cancer. Our Making Connections program is specifically for women with advanced/metastatic cancer. See all upcoming Counterpart events.

Become a volunteer

Women with any type of cancer can apply to join our new intake of Peer Support Volunteers. It is an exciting opportunity to be part of the first intake open to all women with cancer. Applications close 12 August 2022.

Other ways to get involved

If you are a woman who has had a cancer diagnosis we would love to hear from you. Our service was created through the advocacy of women with cancer and consumer participation is essential to our ongoing development. We are looking for consumers to:

  • join the Expansion Project Advisory Group to guide our service expansion
  • assist with training our staff and volunteers by speaking about their experiences or joining a working group to review and revise the Peer Support Volunteer training program
  • share their feedback and ideas about how we can publicise our service through their networks
  • review our communication, marketing and other documents.

If you are interested in helping us extend our service to all women with cancer, please get in touch with our Expansion Project Coordinator Jan Savage ([email protected]).

What’s new – April 2022

Links to support, information and other items from the cancer sector.


New webinar: Maintaining habits of healthy living

In this new Counterpart webinar, presenter Dr Amanda Horden discusses strategies to create all kinds of habits of healthy living, including exercise, to keep up motivation and manage any barriers you might experience.

Visit our webinar recordings page to watch informative webinars on a range of different topics relevent to women with cancer.


Patient Advisory Committee – share your insights

VCCC Alliance: Overcoming cancer together (logo and tagline)

Have your say on the development of a new national project that will help shape the future of cancer research in Australia.

The VCCC Alliance are seeking applications from people who have experienced cancer to form a national Patient Advisory Committee (PAC). You’ll be part of a small committee formed initially to provide crucial input at a pivotal point in the development of a new national Patient-Partnered Cancer Research Program with international scope. Later (pending finalisation of project funding), the PAC will act as a key advisory body during project implementation.

They want to hear from people who are already active cancer consumer advocates. Equally, they are seeking perspectives from many areas of life and community – young adults with cancer, people just beginning treatment, the LGBTIQ+ community, migrant families, people with Health Care Cards, Aboriginal and Torres Strait Islander people, people from the bush and all over Australia. 

Find out more about the Patient Advisory Committee


A COVID-19 prevention trial for cancer patients

C-SMART logo

Studies have shown that people with cancer are more likely to develop severe respiratory infections such as COVID-19 and the flu and need admission more often to the ICU than people without cancer. It is now recommended that immunosupressed people, such as those with cancer, receive a third booster shot of the COVID vaccine because they are particularly vulnerable to severe infection.

Researchers from Austin Health are investigating if a low dose of the drug Interferon-alpha (delivered as a daily nasal spray) can also help to prevent COVID-19 and other viral respiratory infections in cancer patients.

Anyone with a past or current cancer diagnosis is eligible. Download a brochure about the COVID-19 prevention trial for cancer patients or visit the C-SMART website.


Encore – exercise program for women with breast cancer

YWCA Australia’s ‘Encore’ is returning to Victoria with 3 programs starting soon. This free award-winning exercise program is for women who have experienced breast cancer or preventative mastectomy. It is an 8-week program of land and pool-based exercises, healthy lifestyle information, and support.

Download a brochure about Encore.

Encore has been operating in Australia for over 30 years and has helped thousands of women improve strength, mobility, and fitness after breast cancer treatment. In addition to physical benefits, the program is designed to increases social connections and many participants go on to form long-lasting friendships with women they meet during the program. 

Box Hill Exercise Program: 3 May 2022 to 21 Jun 2022, every Tuesday from 6pm–8pm.

Ballarat Exercise Program: 5 May 2022 to 23 Jun 2022, every Thursday from 1pm–3pm.

Bayside/Kingston Exercise Program: 6 May 2022 to 24 Jun 2022, every Friday from 6:30pm–8:30pm.

For more information or to register, visit www.ywcaencore.org.au/programs  


WEHI recruiting volunteers for their Buddy Program

The Walter and Eliza Hall Institute of Medical Research are seeking volunteers to join their Consumer Buddy Program.

Volunteers in the program work directly with a researcher to assist them in communicating their science in plain language to the community.

Download a flyer about the Consumer Buddy Program.


Cancer Experience Survey – how technology helped you

Researchers at the University of Sydney want to know how technologies (websites, emails, text messages, apps) can help you during and after cancer treatment.

They are looking for people diagnosed with breast or ovarian cancer within the last 10 years to complete a survey with questions about the information you wished you knew during or after treatment, and preferred technologies to receive health information.

Download a flyer about the Cancer Experience Survey or go to the Sydney University website for more information or to complete the Cancer Experience Survey.


Survey on new guidelines for POI/menopause after cancer treatment

Women may develop premature menopause as a result of cancer treatment.  If you have been diagnosed with POI (menopause or loss of ovarian function occurring before the age of 40 years), then you are invited to share your opinions in a survey.

This survey will inform the update of an international POI guideline. The survey will research the content, resources and tools for the new guideline.

Download a flyer about the International POI guideline update survey or go to the Monash University website for more information or to fill out the International POI guideline update survey.


Research participants needed: service providers working with Vietnamese women

Service providers who have supported Vietnamese migrant women experiencing family violence in Australia are invited to take part in a research project. Participation will involve an interview exploring your professional experiences supporting Vietnamese migrant women who have navigated family violence.

Download a flyer about the Experiences of family violence among Vietnamese women on partner visas project.


Lymphoedema: what you need to know

March is Lymphoedema Awareness Month

Lymphoedema is a side effect of cancer treatment that affects around one in 5 women with breast or a gynaecological cancer. (Cancer Australia, 2022)

If you have experienced one of these cancers, it is important to know the risk factors, know the symptoms and know where to seek help.

What is lymphoedema?

The lymphatic system runs throughout our body and supports our immune system. A clear fluid called lymph carries nutrients and immune cells to all our cells and takes away waste. Lymph drains through small tubes that are similar to blood vessels and glands called lymph nodes, which helps filter the fluid before it returns to the blood stream.

When the lymphatic system doesn’t work properly, fluid can build up causing parts of our body to swell. In secondary lymphoedema, this happens because the lymphatic system has been damaged or blocked. This can be caused by cancer treatments, including surgery and radiotherapy. (Healthdirect, 2021)

Lymphoedema – signs and symptoms

Early warning signs of lymphoedema include:
* swelling, especially at night
* recurrent cellulitis
* area feels heavy or stiff

Diagnosing lymphoedema early gives you the best chance of avoiding it developing into a severe form. According to the Australasian Lymphology Association (ALA), early warning signs can include:

  • Swelling of a limb or other area. This may come or go, and can be made worse by overuse, staying in one position too long, tight clothing. It may be more obvious by the end of the day.
  • Recurrent cellulitis (an infection of the skin)
  • Feeling heavy or stiff in the affected body part
  • Not being able to move the affected body part as much as before.

If you notice any of these signs, talk to your healthcare provider.

Getting help

An Accredited Lymphoedema Practitioner is a health professional who has shown that they have the knowledge and skills to provide the best advice and care to people affected by lymphoedema. You can find an Accredited Lymphoedema Practitioner on the ALA website.

A practitioner can help you to manage your lymphoedema. They will be able to provide you with advice about:

  • caring for you skin
  • exercises
  • manual lymphatic drainage (if needed)
  • compression garments (if advised)

If you talk to your GP about getting a Management Plan, you can be referred to an Accredited Lymphoedema Practitioner and may be eligible for Medicare rebates for up to five sessions. You can also ask your oncology team about what services are available.

More information

Australasian Lymphology Association website

Webinar recording: Self care for lymphoedema (recorded 9 March 22)

Webinar recording: Lymphoedema (recorded 2 March 21)

Ovarian cancer Navigator: lymphoedema

Breast cancer Navigator: lymphoedema

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